The presentation of seizures and epilepsy in YouTube videos

被引:33
作者
Wong, Victoria S. S. [1 ]
Stevenson, Matthew [2 ]
Selwa, Linda [3 ]
机构
[1] Oregon Hlth & Sci Univ, Dept Neurol, Portland, OR 97201 USA
[2] Clin Neurosci PA, Ft Worth, TX USA
[3] Univ Michigan, Dept Neurol, Ann Arbor, MI USA
关键词
Epilepsy; Internet; Mass media; Seizures; Social media; Social stigma; LANGUAGE;
D O I
10.1016/j.yebeh.2013.01.017
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
We evaluated videos on the social media website, YouTube, containing references to seizures and epilepsy. Of 100 videos, 28% contained an ictal event, and 25% featured a person with epilepsy recounting his or her personal experience. Videos most commonly fell into categories of Personal Experience/Anecdotal (44%) and Informative/Educational (38%). Fifty-one percent of videos were judged as accurate, and 9% were inaccurate; accuracy was not an applicable attribute in the remainder of the videos. Eighty-five percent of videos were sympathetic towards those with seizures or epilepsy, 9% were neutral, and only 6% were derogatory. Ninety-eight percent of videos were thought to be easily understood by a layperson. The user-generated content on YouTube appears to be more sympathetic and accurate compared to other forms of mass media. We are optimistic that with a shifting ratio towards sympathetic content about epilepsy, the amount of stigma towards epilepsy and seizures will continue to lessen. (C) 2013 Elsevier Inc. All rights reserved.
引用
收藏
页码:247 / 250
页数:4
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