Co-creating possibilities for patients in palliative care to reach vital goals - a multiple case study of home-care nursing encounters

被引:17
作者
Bergdahl, Elisabeth [1 ,2 ,3 ]
Benzein, Eva [3 ,4 ]
Ternestedt, Britt-Marie [3 ,5 ,8 ]
Elmberger, Eva [6 ]
Andershed, Birgitta [3 ,7 ]
机构
[1] FOU nu, Ctr Res & Dev, S-17731 Jarfalla, Sweden
[2] Linkoping Univ, Fac Hlth Sci, Dept Med & Hlth Sci, Linkoping, Sweden
[3] Ersta Skondal Univ Coll, Dept Palliat Care Res, Stockholm, Sweden
[4] Linnaeus Univ, Sch Hlth & Caring Sci, Kalmar, Sweden
[5] Karolinska Inst, Care Sci & Soc, Dept Neurobiol, Stockholm, Sweden
[6] Ersta Skondal Univ Coll, Dept Hlth Care Sci, Stockholm, Sweden
[7] Gjovik Univ Coll, Dept Nursing, Gjovik, Norway
[8] Stockholms Sjukhem Fdn, Dept Res & Dev, Stockholm, Sweden
关键词
case study research; home care; nurse-patient interaction; nurse-patient relationships; palliative care; END-OF-LIFE; NURSES; CAREGIVERS; ABILITIES; CANCER; DEATH;
D O I
10.1111/nin.12022
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
The patient's home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home-care nursing encounters (HCNEs) between the nurse, patient and patient's relatives. The existing research on this topic describes both a negative and a positive perspective. There has, however, been a reliance on interview and descriptive methods in this context. The aim of this study was to explore planned HCNEs in palliative care. The design was a multiple case study based on observations. The analysis includes a descriptive and an explanation building phase. The results show that planned palliative HCNEs can be described as a process of co-creating possibilities for the patient to reach vital goals through shared knowledge in a warm and caring atmosphere, based on good caring relations. However, in some HCNEs, co-creation did not occur: Wishes and needs were discouraged or made impossible and vital goals were not reached for the patients or their relatives. Further research is needed to understand why. The co-creative process presented in this article can be seen as a concretization of the palliative care ideal of working with a person-centered approach.
引用
收藏
页码:341 / 351
页数:11
相关论文
共 36 条
[1]   Resilience and well-being in palliative care staff: a qualitative study of hospice nurses' experience of work [J].
Ablett, Janice R. ;
Jones, R. S. P. .
PSYCHO-ONCOLOGY, 2007, 16 (08) :733-740
[2]   Relatives in end-of-life care - part 1: a systematic review of the literature the five last years, January 1999-February 2004 [J].
Andershed, Birgitta .
JOURNAL OF CLINICAL NURSING, 2006, 15 (09) :1158-1169
[3]  
[Anonymous], 2011, WHO definition of palliative care
[4]   Going on a journey: understanding palliative care nursing [J].
Barnard, Alan ;
Hollingum, Christine ;
Hartfiel, Bernadette .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2006, 12 (01) :6-12
[5]   A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer [J].
Bee, Penny E. ;
Barnes, Pamela ;
Luker, Karen A. .
JOURNAL OF CLINICAL NURSING, 2009, 18 (10) :1379-1393
[6]  
Berg Linda, 2007, Int J Nurs Pract, V13, P100, DOI 10.1111/j.1440-172X.2007.00611.x
[7]   Esthetic abilities:: a way to describe abilities of expert nurses in palliative home care [J].
Bergdahl, Elisabeth ;
Wikstrom, Britt-Maj ;
Andershed, Birgitta .
JOURNAL OF CLINICAL NURSING, 2007, 16 (04) :752-760
[8]   Development of nurses' abilities to reflect on how to create good caring relationships with patients in palliative care: an action research approach [J].
Bergdahl, Elisabeth ;
Benzein, Eva ;
Ternestedt, Britt-Marie ;
Andershed, Birgitta .
NURSING INQUIRY, 2011, 18 (02) :111-122
[9]   Being Me and Being Us in a Family Living Close to Death at Home [J].
Carlander, Ida ;
Ternestedt, Britt-Marie ;
Sahlberg-Blom, Eva ;
Hellstrom, Ingrid ;
Sandberg, Jonas .
QUALITATIVE HEALTH RESEARCH, 2011, 21 (05) :683-695
[10]  
CARPER B, 1975, THESIS COLUMBIA U NE