'Use what God has given me': Difference and disparity in breast reconstruction

被引:66
作者
Rubin, Lisa R. [1 ,2 ]
Chavez, Jessica [1 ]
Alderman, Amy [3 ]
Pusic, Andrea L. [4 ]
机构
[1] New Sch Social Res, Dept Psychol, New York, NY 10011 USA
[2] New Sch Publ Engagement, Dept Psychol, New York, NY USA
[3] Univ Michigan, Dept Plast & Reconstruct Surg, Ann Arbor, MI 48109 USA
[4] Mem Sloan Kettering Canc Ctr, Div Plast & Reconstruct Surg, New York, NY 10021 USA
关键词
breast cancer; reconstructive surgery; culture; qualitative methods; body image; health disparities; QUALITY-OF-LIFE; HEALTH; WOMEN; MASTECTOMY; SURGERY; IMPACT;
D O I
10.1080/08870446.2013.782404
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
African-American women are significantly less likely to undergo postmastectomy breast reconstruction compared to white women in the USA. These observed differences have been interpreted as evidence of a healthcare disparity. The current study examines breast reconstruction decision-making among African-American women, locating reconstruction decisions in a context of culture, racial inequality and biomedicalisation. Semi-structured interviews were conducted with 27 African-American women who underwent mastectomy for breast cancer to add patient-centred perspectives to existing conceptualisations of racial/ethnic differences in reconstruction. Participants were socio-demographically diverse, and resided in the New York metropolitan area. Data analysis was informed by grounded theory. Spiritually and culturally informed body ethics often guided surgery decisions. Participants expressed reservations about breast implants, preferring autologous procedures that use what God has given'. For some, breast reconstruction restored a sense of normalcy after cancer; others challenged an imperative to reconstruct. Several participants redirected our focus on access to reconstruction toward access to alternatives, noting the low reimbursement for prostheses, or their unavailability in patients' skin tones. We suggest that a framework of stratified biomedicalization' better addresses the complexities of race, class and gender that inform preference, access and recommendations for breast reconstruction, and focuses attention on access to high and low-tech interventions.
引用
收藏
页码:1099 / 1120
页数:22
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