How can we improve patient-centered care of motor neuron disease?

被引：5
作者：
Hogden, Anne [1 ]
Paynter, Camille [2 ]
Hutchinson, Karen [3 ]
机构：
[1] Univ Tasmania, Australian Inst Hlth Serv Management, Sydney, NSW, Australia
[2] Univ Melbourne, Ctr Neurosci Speech, Melbourne, Vic, Australia
[3] Macquarie Univ, Australian Inst Hlth Innovat, Sydney, NSW, Australia
来源：
NEURODEGENERATIVE DISEASE MANAGEMENT | 2020年 / 10卷 / 02期
基金：
英国医学研究理事会; 澳大利亚国家健康与医学研究理事会;
关键词：
amyotrophic lateral sclerosis; co-design; guidelines; patient and public involvement; patient engagement; policy; shared decision-making; AMYOTROPHIC-LATERAL-SCLEROSIS; DECISION-MAKING; COMMUNICATION; DIAGNOSIS; ALS; NEWS;
D O I：
10.2217/nmt-2019-0031
中图分类号：
R74 [神经病学与精神病学];
学科分类号：
摘要：
This perspectives paper discusses patient-centered care for people living with motor neuron disease. We identify challenges and offer solutions from the patient-centered care literature for this population in frontline care, service delivery, research and health system organization. Examples from Australian and international motor neuron disease care are used to illustrate interrelated issues for practice and policy.
引用
收藏
页码：91 / 97
页数：7
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