Conceptualizing eating disorder recovery research: Current perspectives and future research directions

被引:12
作者
Hower, Heather [1 ,2 ]
LaMarre, Andrea [3 ]
Bachner-Melman, Rachel [4 ,5 ]
Harrop, Erin N. [6 ]
McGilley, Beth [7 ]
Kenny, Therese E. [8 ]
机构
[1] Univ Calif San Diego, Eating Disorders Ctr Treatment & Res, Dept Psychiat, Sch Med, 4510 Execut Dr, San Diego, CA 92121 USA
[2] Brown Univ, Hassenfeld Child Innovat Inst, Dept Hlth Serv Policy & Practice, Sch Publ Hlth, 121 South Main St, Providence, RI 02903 USA
[3] Massey Univ, Sch Psychol, Private Bag 102-904, Auckland 0632, New Zealand
[4] Ruppin Acad Ctr, Clin Psychol Grad Program, IL-4025000 Emek Hefer, Israel
[5] Hebrew Univ Jerusa Lem, Sch Social Work, IL-9190501 Jerusalem, Israel
[6] Univ Denver, Grad Sch Social Work, 2148 5 High St, Denver, CO 80208 USA
[7] Univ Kansas, Sch Med, 1010 N Kansas St, Wichita, KS 67214 USA
[8] Univ Guelph, Dept Psychol Clin Child & Adolescent Psychol, 50 Stone Rd East, Guelph, ON N1G 2W1, Canada
关键词
Eating disorders; Recovery; Quantitative research; Qualitative research; Multi-methods research; QUALITY-OF-LIFE; ANOREXIA-NERVOSA; RISK CALCULATOR; BULIMIA-NERVOSA; HELP-SEEKING; EXPERIENCES; VALIDATION; SYMPTOMS; BARRIERS; WOMEN;
D O I
10.1186/s40337-022-00678-8
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
Background How we research eating disorder (ED) recovery impacts what we know (perceive as fact) about it. Traditionally, research has focused more on the "what" of recovery (e.g., establishing criteria for recovery, reaching consensus definitions) than the "how" of recovery research (e.g., type of methodologies, triangulation of perspectives). In this paper we aim to provide an overview of the ED field's current perspectives on recovery, discuss how our methodologies shape what is known about recovery, and suggest a broadening of our methodological "toolkits" in order to form a more complete picture of recovery. Body This paper examines commonly used methodologies in research, and explores how incorporating different perspectives can add to our understanding of the recovery process. To do this, we (1) provide an overview of commonly used methodologies (quantitative, qualitative), (2) consider their benefits and limitations, (3) explore newer approaches, including mixed-methods, creative methods (e.g., Photovoice, digital storytelling), and multi-methods (e.g., quantitative, qualitative, creative methods, psycho/physiological, behavioral, laboratory, online observations), and (4) suggest that broadening our methodological "toolkits" could spur more nuanced and specific insights about ED recoveries. We propose a potential future research model that would ideally have a multi-methods design, incorporate different perspectives (e.g., expanding recruitment of diverse participants, including supportive others, in study co-creation), and a longitudinal course (e.g., capturing cognitive and emotional recovery, which often comes after physical). In this way, we hope to move the field towards different, more comprehensive, perspectives on ED recovery. Conclusion Our current perspectives on studying ED recovery leave critical gaps in our knowledge about the process. The traditional research methodologies impact our conceptualization of recovery definitions, and in turn limit our understanding of the phenomenon. We suggest that we expand our range of methodologies, perspectives, and timeframes in research, in order to form a more complete picture of what is possible in recovery; the multiple aspects of an individual's life that can improve, the greater number of people who can recover than previously believed, and the reaffirmation of hope that, even after decades, individuals can begin, and successfully continue, their ED recovery process. Plain English summary How we research eating disorder (ED) recovery impacts what we know (perceive as fact) about it. In this paper we aim to provide an overview of the ED field's current perspectives on recovery, discuss how our methodologies shape what is known about recovery, and suggest a broadening of our methodological "toolkits" in order to form a more complete picture of recovery. To do this, we (1) provide an overview of commonly used methodologies (quantitative, qualitative), (2) consider their benefits and limitations, (3) explore newer approaches, including mixed-methods, creative methods (e.g., Photovoice, digital storytelling), and multi-methods (e.g., quantitative, qualitative, creative methods, psycho/physiological, behavioral, laboratory, online observations), and (4) propose a potential future research model with a multi-methods design, incorporating different perspectives (e.g., increasing recruitment of diverse participants, including supportive others in study co-creation), and a longitudinal course (e.g., capturing cognitive recovery, which often comes after physical). In this way, we seek to expand our picture of what is possible in recovery; the multiple aspects of an individual's life that can improve, the greater number of people who can recover than previously believed, and the reaffirmation of hope that, even after decades, individuals can begin and continue their ED recovery process.
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页数:16
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共 128 条
[1]  
Abraham SE, 2006, AUST NZ J PSYCHIAT, V40, P150, DOI 10.1111/j.1440-1614.2006.01762.x
[2]   Parents know best: Caregiver perspectives on eating disorder recovery [J].
Accurso, Erin C. ;
Sim, Leslie ;
Muhlheim, Lauren ;
Lebow, Jocelyn .
INTERNATIONAL JOURNAL OF EATING DISORDERS, 2020, 53 (08) :1252-1260
[3]   What does remission tell us about women with eating disorders? Investigating applications of various remission definitions and their associations with quality of life [J].
Ackard, Diann M. ;
Richter, Sara A. ;
Egan, Amber M. ;
Cronemeyer, Catherine L. .
JOURNAL OF PSYCHOSOMATIC RESEARCH, 2014, 76 (01) :12-18
[4]   Development and multi-site validation of a new condition-specific quality of life measure for eating disorders [J].
Adair, Carol E. ;
Marcoux, Gisele C. ;
Cram, Brian S. ;
Ewashen, Carol J. ;
Chafe, Janet ;
Cassin, Stephanie E. ;
Pinzon, Jorge ;
Gusella, Joanne L. ;
Geller, Josie ;
Scattolon, Yvette ;
Fergusson, Patricia ;
Styles, Lisa ;
Brown, Krista E. .
HEALTH AND QUALITY OF LIFE OUTCOMES, 2007, 5
[5]   Perceived barriers and facilitators towards help-seeking for eating disorders: A systematic review [J].
Ali, Kathina ;
Farrer, Louise ;
Fassnacht, Daniel B. ;
Gulliver, Amelia ;
Bauer, Stephanie ;
Griffiths, Kathleen M. .
INTERNATIONAL JOURNAL OF EATING DISORDERS, 2017, 50 (01) :9-21
[6]   A recovery-oriented service system: Setting some system level standards [J].
Anthony, WA .
PSYCHIATRIC REHABILITATION JOURNAL, 2000, 24 (02) :159-168
[7]   A Qualitative Analysis of Female Collegiate Athletes' Eating Disorder Recovery Experiences [J].
Arthur-Cameselle, Jessyca N. ;
Quatromoni, Paula A. .
SPORT PSYCHOLOGIST, 2014, 28 (04) :334-346
[8]   Marketing Residential Treatment Programs for Eating Disorders: A Call for Transparency [J].
Attia, Evelyn ;
Blackwood, Kristy L. ;
Guarda, Angela S. ;
Marcus, Marsha D. ;
Rothman, David J. .
PSYCHIATRIC SERVICES, 2016, 67 (06) :663-665
[9]   An examination of cognitive versus behavioral components of recovery from anorexia nervosa [J].
Bachner-Melman, Rachel ;
Zohar, Ada H. ;
Ebstein, Richard P. .
JOURNAL OF NERVOUS AND MENTAL DISEASE, 2006, 194 (09) :697-703
[10]   The Eating Disorders Recovery Questionnaire: psychometric properties and validity [J].
Bachner-Melman, Rachel ;
Lev-Ari, Lilac ;
Zohar, Ada H. ;
Linketsky, Michal .
EATING AND WEIGHT DISORDERS-STUDIES ON ANOREXIA BULIMIA AND OBESITY, 2021, 26 (08) :2633-2643