Quality of life in vitiligo patients

被引:18
作者
Mitrevska, Natasa Teovska [1 ]
Eleftheriadou, Viktoria [2 ]
Guarneri, Fabrizio [3 ]
机构
[1] Remedika Gen Hosp, Dept Dermatol, Skopje 1000, Macedonia
[2] Univ Nottingham, Ctr Evidence Based Dermatol, Nottingham NG7 2RD, England
[3] Univ Messina, Dermatol Sect, Dept Terr Social Med, Messina, Italy
关键词
quality of life; skin diseases; vitiligo;
D O I
10.1111/dth.12007
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Quality of life is defined by the World Health Organization as individuals perceptions of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns. Often overlooked in the past, it is nowadays considered, in a more holistic view of medicine, a decisive factor to understand the impact of diseases and improve the quality of medical care. Such evaluation is particularly relevant for dermatological diseases, because visibility of the lesions can significantly affect self-esteem and social relationships. Vitiligo represents an emblematic case: often disfiguring and located in visible areas, confused in the past (and, in many world regions, even in the present) with leprosy, often perceived by physicians as a harmless, purely cosmetic problem, it significantly decreases the quality of life of affected persons. After a brief overview on definition, usefulness and methods for the assessment of quality of life, the authors examine the peculiarities of its relationship with skin diseases, particularly vitiligo. The state of the art of knowledge and research in this field is presented, together with data showing usefulness and positive results of a multidisciplinary approach, which adequately keeps into account perceived quality of life, on patient's satisfaction, adherence to treatment protocols and, ultimately, better outcome of treatments. In this context, an important role can be played by support communities, groups of patients and dedicated associations and societies, connected through modern communication networks like the Internet.
引用
收藏
页码:S28 / S31
页数:4
相关论文
共 23 条
[1]  
Agarwal G, 1997, FAM PRACT, V15, pS19
[2]  
Al Robaee AA, 2007, SAUDI MED J, V28, P1414
[3]  
[Anonymous], 1993, MEAS QUAL LIF DEV WH
[4]   The family impact of skin diseases: the Greater Patient concept [J].
Basra, M. K. A. ;
Finlay, A. Y. .
BRITISH JOURNAL OF DERMATOLOGY, 2007, 156 (05) :929-937
[5]  
Camilleri-Brennan J, 1999, J ROY COLL SURG EDIN, V44, P252
[6]  
Eisen G M., 1998, Quality of life assessment. Last advances in the measurement and application of quality of life in clinical studies, P137
[7]   Which outcomes should we measure in vitiligo? Results of a systematic review and a survey among patients and clinicians on outcomes in vitiligo trials [J].
Eleftheriadou, V. ;
Thomas, K. S. ;
Whitton, M. E. ;
Batchelor, J. M. ;
Ravenscroft, J. C. .
BRITISH JOURNAL OF DERMATOLOGY, 2012, 167 (04) :804-814
[8]   Future research into the treatment of vitiligo: where should our priorities lie? Results of the vitiligo priority setting partnership [J].
Eleftheriadou, V. ;
Whitton, M. E. ;
Gawkrodger, D. J. ;
Batchelor, J. ;
Corne, J. ;
Lamb, B. ;
Ersser, S. ;
Ravenscroft, J. ;
Thomas, K. S. .
BRITISH JOURNAL OF DERMATOLOGY, 2011, 164 (03) :530-536
[9]  
Mechri Anwar, 2006, Tunis Med, V84, P632
[10]   Vitiligo: the historical curse of depigmentation [J].
Millington, George W. M. ;
Levell, Nick J. .
INTERNATIONAL JOURNAL OF DERMATOLOGY, 2007, 46 (09) :990-995