Amyotrophic lateral sclerosis: Time for research on psychological intervention?

被引：37

作者：

Pagnini, Francesco ^{[1
]}

Simmons, Zachary ^{[2
]}

Corbo, Massimo ^{[3
]}

Molinari, Enrico ^{[1
,4
]}

机构：

[1] Catholic Univ Milan, Dept Psychol, I-20123 Milan, Italy

[2] Penn State Univ, Milton S Hershey Med Ctr, Coll Med, Dept Neurol, Hershey, PA 17033 USA

[3] Osped Niguarda Ca Granda, Fdn Serena Onlus, NEuroMuscular Omnictr NEMO, Milan, Italy

[4] IRCCS, Ist Auxologico Italiano, San Giuseppe Hosp, Psychol Res Lab, Oggebbio, VB, Italy

来源：

AMYOTROPHIC LATERAL SCLEROSIS | 2012年 / 13卷 / 05期

关键词：

Quality of life; psychological research; clinical psychology; psychological intervention; psychotherapy; ALS;

D O I：

10.3109/17482968.2011.653572

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

The literature on psychological aspects of amyotrophic lateral sclerosis (ALS) has explored quality of life, depression, anxiety, spirituality, hopelessness, and other constructs in an attempt to understand the patient's grief and other psychological responses to the disease. However, there is a lack of research on the efficacy of psychological interventions. We believe it is important to develop 'best practices' for the improvement of quality of life and the reduction of psychological distress related to ALS.

引用

页码：416 / 417

页数：2

共 6 条

[1] The heterogeneity of amyotrophic lateral sclerosis:: A possible explanation of treatment failure [J].

Beghi, Ettore ;

Mennini, Tiziana ;

Bendotti, Caterina ;

Bigini, Paolo ;

Logroscino, Giancarlo ;

Chio, Adriano ;

Hardiman, Orla ;

Mitchell, Douglas ;

Swingler, Robert ;

Traynor, Bryan J. ;

Al-Chalabi, Ammar .

CURRENT MEDICINAL CHEMISTRY, 2007, 14 (30) :3185-3200

[2] Validity of the ALS-Depression-Inventory (ADI-12) -: A new screening instrument for depressive disorders in patients with amyotrophic lateral sclerosis [J].

Hammer, Eva Maria ;

Haecker, Sonja ;

Hautzinger, Martin ;

Meyer, Thomas D. ;

Kuebler, Andrea .

JOURNAL OF AFFECTIVE DISORDERS, 2008, 109 (1-2) :213-219

[3] SOD1, ANG, VAPB, TARDBP, and FUS mutations in familial amyotrophic lateral sclerosis: genotyp-phenotype correlations [J].

Millecamps, Stephanie ;

Salachas, Francois ;

Cazeneuve, Cecile ;

Gordon, Paul ;

Bricka, Bernard ;

Camuzat, Agnes ;

Guillot-Noel, Lena ;

Russaouen, Odile ;

Bruneteau, Gaelle ;

Pradat, Pierre-Francois ;

Le Forestier, Nadine ;

Vandenberghe, Nadia ;

Danel-Brunaud, Veronique ;

Guy, Nathalie ;

Thauvin-Robinet, Christel ;

Lacomblez, Lucette ;

Couratier, Philippe ;

Hannequin, Didier ;

Seilhean, Danielle ;

Le Ber, Isabelle ;

Corcia, Philippe ;

Camu, William ;

Brice, Alexis ;

Rouleau, Guy ;

LeGuern, Eric ;

Meininger, Vincent .

JOURNAL OF MEDICAL GENETICS, 2010, 47 (08) :554-560

[4] Amyotrophic lateral sclerosis [J].

Mitchell, J. D. ;

Borasio, G. D. .

LANCET, 2007, 369 (9578) :2031-2041

[5]

Pagnini F, 2010, FRONT PSYCHOL, V30, P5

[6] The ALSSQOL - Balancing physical and nonphysical factors in assessing quality of life in ALS [J].

Simmons, Z. ;

Felgoise, S. H. ;

Bremer, B. A. ;

Walsh, S. M. ;

Hufford, D. J. ;

Bromberg, M. B. ;

David, W. ;

Forshew, D. A. ;

Heiman-Patterson, T. D. ;

Lai, E. C. ;

McCluskey, L. .

NEUROLOGY, 2006, 67 (09) :1659-1664

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