Disentangling Public Participation In Science and Biomedicine

被引:35
作者
Kelty, Christopher [1 ,2 ]
Panofsky, Aaron [1 ,3 ]
机构
[1] Univ Calif Los Angeles, Inst Soc & Genet, Los Angeles, CA 90095 USA
[2] Univ Calif Los Angeles, Dept Informat Studies, Los Angeles, CA 90095 USA
[3] Univ Calif Los Angeles, Luskin Sch Publ Affairs, Dept Publ Policy, Los Angeles, CA 90095 USA
基金
美国国家科学基金会;
关键词
2.0 SOCIAL NETWORKING; DECISION-MAKING; CONSUMER; PARTNERSHIP; INVOLVEMENT; ENGAGEMENT; CITIZEN; GENOME; ORGANIZATIONS; DEMOCRACY;
D O I
10.1186/gm525
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
Background: This article provides a framework for disentangling the concept of participation, with emphasis on participation in genomic medicine. We have derived seven 'dimensions' of participation that are most frequently invoked in the extensive, heterogeneous literature on participation. To exemplify these dimensions, we use material from a database of 102 contemporary cases of participation, and focus here on cases specific to science and medicine. We describe the stakes of public participation in biomedical research, with a focus on genomic medicine and lay out the seven dimensions. Discussion: We single out five cases of participation that have particular relevance to the field of genomic medicine, we apply the seven dimensions to show how we can differentiate among forms of participation within this domain. Summary: We conclude with some provocations to researchers and some recommendations for taking variation in participation more seriously.
引用
收藏
页数:14
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