Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review

被引:15
作者
Fusi-Schmidhauser, Tanja [1 ,2 ]
Riglietti, Alessia [3 ]
Froggatt, Katherine [4 ]
Preston, Nancy [4 ]
机构
[1] Oncol Inst Southern Switzerland, Palliat & Support Care Clin, CH-6900 Lugano, Switzerland
[2] Ente Osped Cantonale, CH-6900 Lugano, Switzerland
[3] Ente Osped Cantonale, Osped Reg Lugano, Resp Care Dept, Lugano, Switzerland
[4] Univ Lancaster, Fac Hlth & Med, Int Observ End Life Care, Lancaster, England
关键词
Care integration; COPD; palliative care; taxonomy; OF-LIFE CARE; ADVANCED COPD; LUNG-CANCER; PEOPLE; NEEDS; TRIAL; BREATHLESSNESS; MANAGEMENT; STANDARDS; SYMPTOMS;
D O I
10.1080/15412555.2019.1566893
中图分类号
R56 [呼吸系及胸部疾病];
学科分类号
摘要
Although chronic obstructive pulmonary disease (COPD) is recognized as being a life-limiting condition with palliative care needs, palliative care provision is seldom implemented. The disease unpredictability, the misconceptions about palliative care being only for people with cancer, and only relevant in the last days of life, prevent a timely integrated care plan. This systematic review aimed to explore how palliative care is provided in advanced COPD and to identify elements defining integrated palliative care. Eight databases, including MEDLINE, EMBASE and CINAHL, were searched using a comprehensive search strategy to identify studies on palliative care provision in advanced COPD, published from January 1, 1960 to November 30, 2017. Citation tracking and evaluation of trial registers were also performed. Study quality was assessed with a critical appraisal tool for both qualitative and quantitative data. Of the 458 titles, 24 were eligible for inclusion. Experiences about advanced COPD, palliative care timing, service delivery and palliative care integration emerged as main themes, defining a developing taxonomy for palliative care provision in advanced COPD. This taxonomy involves different levels of care provision and integrated care is the last step of this dynamic process. Furthermore, palliative care involvement, holistic needs' assessment and management and advance care planning have been identified as elements of integrated care. This literature review identified elements that could be used to develop a taxonomy of palliative care delivery in advanced COPD. Further research is needed to improve our understanding on palliative care provision in advanced COPD.
引用
收藏
页码:600 / 611
页数:12
相关论文
共 51 条
[1]   Outcome evaluation of a randomized trial of the PhoenixCare intervention: Program of case management and coordinated care for the seriously chronically ill [J].
Aiken, Leona S. ;
Butner, Jonathan ;
Lockhart, Carol A. ;
Volk-Craft, Barbara E. ;
Hamilton, Gillian ;
Williams, Frank G. .
JOURNAL OF PALLIATIVE MEDICINE, 2006, 9 (01) :111-126
[2]   Referral to palliative care in COPD and other chronic diseases: A population-based study [J].
Beernaert, Kim ;
Cohen, Joachim ;
Deliens, Luc ;
Devroey, Dirk ;
Vanthomme, Katrien ;
Pardon, Koen ;
Van den Block, Lieve .
RESPIRATORY MEDICINE, 2013, 107 (11) :1731-1739
[3]   Giving Voice to Patients' and Family Caregivers' Needs in Chronic Heart Failure: Implications for Palliative Care Programs [J].
Bekelman, David B. ;
Nowels, Carolyn T. ;
Retrum, Jessica H. ;
Allen, Larry A. ;
Shakar, Simon ;
Hutt, Evelyn ;
Heyborne, Theresa ;
Main, Deborah S. ;
Kutner, Jean S. .
JOURNAL OF PALLIATIVE MEDICINE, 2011, 14 (12) :1317-1324
[4]   Conceptual Models for Integrating Palliative Care at Cancer Centers [J].
Bruera, Eduardo ;
Hui, David .
JOURNAL OF PALLIATIVE MEDICINE, 2012, 15 (11) :1261-1269
[5]   HELPing older people with very severe chronic obstructive pulmonary disease (HELP-COPD): mixed-method feasibility pilot randomised controlled trial of a novel intervention [J].
Buckingham, Susan ;
Kendall, Marilyn ;
Ferguson, Susie ;
MacNee, William ;
Sheikh, Aziz ;
White, Patrick ;
Worth, Allison ;
Boyd, Kirsty ;
Murray, Scott A. ;
Pinnock, Hilary .
NPJ PRIMARY CARE RESPIRATORY MEDICINE, 2015, 25
[6]   Best-practice care for people with advanced chronic obstructive pulmonary disease: the potential role of a chronic obstructive pulmonary disease care co-ordinator [J].
Burgess, Teresa ;
Young, Mary ;
Crawford, Gregory B. ;
Brooksbank, Mary A. ;
Brown, Margaret .
AUSTRALIAN HEALTH REVIEW, 2013, 37 (04) :474-481
[7]   Integrating palliative care within acute stroke services: developing a programme theory of patient and family needs, preferences and staff perspectives [J].
Burton, Christopher R. ;
Payne, Sheila .
BMC PALLIATIVE CARE, 2012, 11
[8]   Current and planned palliative care service provision for chronic obstructive pulmonary disease patients in 239 UK hospital units: comparison with the gold standards framework [J].
Buxton, Katherine L. ;
Stone, Robert A. ;
Buckingham, Rhona J. ;
Pursey, Nancy A. ;
Roberts, Christopher M. .
PALLIATIVE MEDICINE, 2010, 24 (05) :480-485
[9]   The Emerging Chronic Obstructive Pulmonary Disease Epidemic Clinical Impact, Economic Burden, and Opportunities for Disease Management [J].
Carter, Rick ;
Tiep, Brian L. ;
Tiep, Rebecca E. .
DISEASE MANAGEMENT & HEALTH OUTCOMES, 2008, 16 (05) :275-284
[10]   Effect of a Home-Based Palliative Care Program on Healthcare Use and Costs [J].
Cassel, J. Brian ;
Kerr, Kathleen M. ;
McClish, Donna K. ;
Skoro, Nevena ;
Johnson, Suzanne ;
Wanke, Carol ;
Hoefer, Daniel .
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2016, 64 (11) :2288-2295