Development and Initial Assessment of a Patient Education Video about Pharmacogenetics

被引:17
作者
Mills, Rachel [1 ]
Ensinger, Megan [2 ]
Callanan, Nancy [3 ]
Haga, Susanne B. [1 ]
机构
[1] Duke Univ, Ctr Appl Genom & Precis Med, Dept Med, 304 Res Dr,Box 90141, Durham, NC 27710 USA
[2] Bing Canc Ctr, OhioHlth Genet Counseling Program, 500 Thomas Ln Ste 2D Columbus, Columbus, OH 43214 USA
[3] Univ N Carolina, Greensboro Sch Hlth & Human Serv, Genet Counseling Program, 1400 Spring Garden St, Greensboro, NC 27412 USA
来源
JOURNAL OF PERSONALIZED MEDICINE | 2017年 / 7卷 / 02期
关键词
patient education; educational video; pharmacogenetics; CYSTIC-FIBROSIS; KNOWLEDGE; INTERVENTIONS; FAMILIES; WEBSITE;
D O I
10.3390/jpm7020004
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
As few patient-friendly resources about pharmacogenetics are currently available, we aimed to create and assess a patient educational video on pharmacogenetic testing. A primary literature and resources review was conducted to inform the content and the format of the video. The educational video was then created using a commercially available animation program and pilot tested in focus groups of the general public and by an online survey of pharmacists. Emerging themes from the focus groups and survey indicate a desire for appropriate risk contextualization and specific examples when pharmacogenetic testing may be beneficial. Focus group participants also expressed a preference for a video with live action, and more text to reinforce concepts. Pharmacists generally felt that the video was understandable for patients and relevant for decision-making regarding testing. Using this initial feedback and the identification of important concepts to include in pharmacogenetics educational tools, we plan to revise the video, perform additional evaluations, and publish the video for public use in the future.
引用
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页数:10
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