Community Participation, Supports, and Barriers of School-Age Children With and Without Disabilities

被引:174
作者
Bedell, Gary [1 ]
Coster, Wendy [2 ]
Law, Mary [3 ,4 ]
Liljenquist, Kendra [2 ]
Kao, Ying-Chia [2 ]
Teplicky, Rachel [3 ,4 ]
Anaby, Dana [5 ]
Khetani, Mary Alunkal [6 ]
机构
[1] Tufts Univ, Dept Occupat Therapy, Medford, MA 02155 USA
[2] Boston Univ, Dept Occupat Therapy, Sargent Coll Rehabil Sci, Boston, MA 02215 USA
[3] McMaster Univ, CanChild Ctr Childhood Disabil Res, Hamilton, ON, Canada
[4] McMaster Univ, Sch Rehabil Sci, Hamilton, ON, Canada
[5] McGill Univ, Dept Occupat Therapy, Montreal, PQ, Canada
[6] Colorado State Univ, Dept Occupat Therapy, Ft Collins, CO 80523 USA
来源
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION | 2013年 / 94卷 / 02期
关键词
Children; Community; Environment; Social participation; Rehabilitation; CEREBRAL-PALSY; SOCIAL-PARTICIPATION; ENVIRONMENT MEASURE; LEISURE ACTIVITIES; IN-HOME; PATTERNS; YOUTH;
D O I
10.1016/j.apmr.2012.09.024
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Objective: To examine patterns of community participation and environmental factors that affect community participation for school-age children with and without disabilities. Design: Cross-sectional, descriptive, and exploratory study. Setting: Parents from the United States and Canada completed the main outcome measure online in their homes or communities. Participants: Parents (N= 576) reported on their children aged 5 to 17 years with disabilities (n=282) and without disabilities (n=294). Interventions: Not applicable. Main Outcome Measure: Participation and Environment Measure for Children and Youth. Results: Group differences in summary scores and many items were significant (P<.001). Children with disabilities participated less frequently, were less involved, and had less environmental support in the community than children without disabilities. Parents of children with disabilities desired more change in their child's participation than parents of children without disabilities. Effect sizes for summary scores were moderate to very large (n(2)p from .11-.40), with the largest group difference found in environment scores. Overall, the largest group differences in participation were in "unstructured physical activities" and "getting together with other children" also the 2 areas where parents of children with disabilities most frequently desired change. The largest differences in environmental impact were in physical, social, and cognitive activity demands and availability/adequacy of programs and services. Conclusions: Results provide insights about where greater efforts are needed to support community participation of school-age children with disabilities. Further study with a more diverse sample in terms of race/ethnicity, family income/education levels, and geographic region is needed to determine the extent to which results may be generalized. Archives of Physical Medicine and Rehabilitation 2013;94:315-23 (C) 2013 by the American Congress of Rehabilitation Medicine
引用
收藏
页码:315 / 323
页数:9
相关论文
共 43 条
[1]   Further validation of the Child and Adolescent Scale of Participation (CASP) [J].
Bedell, Gary .
DEVELOPMENTAL NEUROREHABILITATION, 2009, 12 (05) :342-351
[2]   Parent Perspectives to Inform Development of Measures of Children's Participation and Environment [J].
Bedell, Gary M. ;
Khetani, Mary A. ;
Cousins, Martha A. ;
Coster, Wendy J. ;
Law, Mary C. .
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2011, 92 (05) :765-773
[3]   Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries [J].
Bedell, GM ;
Cohn, ES ;
Dumas, HM .
AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, 2005, 59 (03) :273-284
[4]   Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: a follow-up study [J].
Bedell, GM ;
Dumas, HM .
BRAIN INJURY, 2004, 18 (01) :65-82
[5]  
BROWN M, 1987, ARCH PHYS MED REHAB, V68, P828
[6]   Access of children with cerebral palsy to the physical, social and attitudinal environment they need: a cross-sectional European study [J].
Colver, Allan F. ;
Dickinson, Heather O. ;
Parkinson, Kathryn ;
Arnaud, Catherine ;
Beckung, Eva ;
Fauconnier, Jerome ;
Marcelli, Marco ;
McManus, Vicki ;
Michelsen, Susan I. ;
Parkes, Jackie ;
Thyen, Ute .
DISABILITY AND REHABILITATION, 2011, 33 (01) :28-35
[7]   Measuring participation of children with disabilities: Issues and challenges [J].
Coster, Wendy ;
Khetani, Mary Alunkal .
DISABILITY AND REHABILITATION, 2008, 30 (08) :639-648
[8]   Development of the participation and environment measure for children and youth: conceptual basis [J].
Coster, Wendy ;
Law, Mary ;
Bedell, Gary ;
Khetani, Mary ;
Cousins, Martha ;
Teplicky, Rachel .
DISABILITY AND REHABILITATION, 2012, 34 (03) :238-246
[9]   Psychometric evaluation of the Participation and Environment Measure for Children and Youth [J].
Coster, Wendy ;
Bedell, Gary ;
Law, Mary ;
Khetani, Mary Alunkal ;
Teplicky, Rachel ;
Liljenquist, Kendra ;
Gleason, Kara ;
Kao, Ying-Chia .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2011, 53 (11) :1030-1037
[10]   Exploring postinjury living environments for children and youth with acquired brain injury [J].
DeMatteo, Carol A. ;
Cousins, Martha A. ;
Lin, Chia-Yu A. ;
Law, Mary C. ;
Colantonio, Angela ;
Macarthur, Colitt .
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2008, 89 (09) :1803-1810