Philosophical perspectives on response shift

被引:30
作者
McClimans, Leah [1 ]
Bickenbach, Jerome [2 ]
Westerman, Marjan [3 ]
Carlson, Licia [4 ]
Wasserman, David [5 ]
Schwartz, Carolyn [6 ,7 ,8 ]
机构
[1] Univ S Carolina, Dept Philosophy, Columbia, SC 29208 USA
[2] Univ Lucerne, Dept Hlth Sci & Hlth Policy, Disabil Policy Unit, Luzern, Switzerland
[3] Vrije Univ Amsterdam, Fac Earth & Life Sci, Amsterdam, Netherlands
[4] Providence Coll, Dept Philosophy, Providence, RI 02918 USA
[5] Yeshiva Univ, Ctr Eth, New York, NY 10033 USA
[6] DeltaQuest Fdn Inc, Concord, MA USA
[7] Tufts Univ, Sch Med, Dept Med, Boston, MA 02111 USA
[8] Tufts Univ, Sch Med, Dept Orthopaed Surg, Boston, MA 02111 USA
关键词
Response shift; Quality of life; PROMs; Philosophy; Disability; Methodology; QUALITY-OF-LIFE;
D O I
10.1007/s11136-012-0300-x
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
This paper brings a philosophical perspective to response shift research with the aim of raising new critical questions, clarifying some of the concepts employed, and providing a philosophical context within which to critically examine the assumptions that shape the field. This critical analysis aims to reveal assumptions and clarify concepts and/or definitions that undergird methodological practice and theory. We bring attention to the distinction of weak and strong evaluations, and the implications and consequences for construct validity and for designing patient-reported outcome measures (PROMs). We then consider the epistemology of PROMs, suggesting that they are better suited to a social constructivist approach than a scientific realist one. Finally, we examine the relationship between disability and response shift, arguing that in at least some cases, response shifts should not be understood as 'measurement bias'. Our analysis reveals various concerns and further questions related to the role that substantive values play in the assessment of QoL. It also draws response shift into a wider arena, with broader issues of interpretation, self-evaluation, the meaning of the 'good life', and the status and legitimacy we accord to various scientific methods.
引用
收藏
页码:1871 / 1878
页数:8
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