Patient preferences of decision-making in the context of genetic testing for breast cancer risk

被引:27
作者
Helmes, AW
Bowen, DJ
Bengel, J
机构
[1] Fred Hutchinson Canc Res Ctr, Seattle, WA 98109 USA
[2] Univ Freiburg, Freiburg, Germany
关键词
genetic testing; breast cancer; decision-making; autonomy; physician;
D O I
10.1097/00125817-200205000-00009
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
Purpose: We conducted a study on women's preferred physician involvement in the decision to obtain genetic testing for breast cancer risk. Methods: Women from a primary care physician network completed a telephone survey and a written baseline questionnaire. Results: The majority preferred to make up their own minds. Predictors of leaving the decision to providers were less education, less knowledge, and higher external health locus of control. Trust in one's physician mediated the effect of health locus of control on decision method. Conclusion: Physicians will face requests from low-risk women and will need effective communication skills to inform women about the test.
引用
收藏
页码:150 / 157
页数:8
相关论文
共 45 条
[1]   Interest in learning of personal genetic risk for cancer: A general population survey [J].
Andrykowski, MA ;
Munn, RK ;
Studts, JL .
PREVENTIVE MEDICINE, 1996, 25 (05) :527-536
[2]   Genetic counseling and testing for breast-ovarian cancer susceptibility: What do women want? [J].
Audrain, J ;
Rimer, B ;
Cella, D ;
Garber, J ;
Peshkin, BN ;
Ellis, J ;
Schildkraut, J ;
Stefanek, M ;
Vogel, V ;
Lerman, C .
JOURNAL OF CLINICAL ONCOLOGY, 1998, 16 (01) :133-138
[3]   Regaining the initiative - Forging a new model of the patient physician relationship [J].
Balint, J ;
Shelton, W .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 1996, 275 (11) :887-891
[4]   THE MODERATOR MEDIATOR VARIABLE DISTINCTION IN SOCIAL PSYCHOLOGICAL-RESEARCH - CONCEPTUAL, STRATEGIC, AND STATISTICAL CONSIDERATIONS [J].
BARON, RM ;
KENNY, DA .
JOURNAL OF PERSONALITY AND SOCIAL PSYCHOLOGY, 1986, 51 (06) :1173-1182
[5]  
Benkendorf JL, 1997, AM J MED GENET, V73, P296, DOI 10.1002/(SICI)1096-8628(19971219)73:3<296::AID-AJMG13>3.0.CO
[6]  
2-E
[7]   Attitudes, knowledge, and risk perceptions of women with breast and/or ovarian cancer considering testing for BRCA1 and BRCA2 [J].
Bluman, LG ;
Rimer, BK ;
Berry, DA ;
Borstelmann, N ;
Iglehart, JD ;
Regan, K ;
Schildkraut, J ;
Winer, EP .
JOURNAL OF CLINICAL ONCOLOGY, 1999, 17 (03) :1040-1046
[8]   THE PATIENTS ROLE IN CLINICAL DECISION-MAKING [J].
BRODY, DS .
ANNALS OF INTERNAL MEDICINE, 1980, 93 (05) :718-722
[9]   PATIENT PERCEPTION OF INVOLVEMENT IN MEDICAL-CARE - RELATIONSHIP TO ILLNESS ATTITUDES AND OUTCOMES [J].
BRODY, DS ;
MILLER, SM ;
LERMAN, CE ;
SMITH, DG ;
CAPUTO, GC .
JOURNAL OF GENERAL INTERNAL MEDICINE, 1989, 4 (06) :506-511
[10]   INFORMATION AND PARTICIPATION PREFERENCES AMONG CANCER-PATIENTS [J].
CASSILETH, BR ;
ZUPKIS, RV ;
SUTTONSMITH, K ;
MARCH, V .
ANNALS OF INTERNAL MEDICINE, 1980, 92 (06) :832-836