UK consensus guidelines for the delivery of unexpected news in obstetric ultrasound: The ASCKS framework

被引:18
作者
Johnson, Judith [1 ,2 ,3 ]
Arezina, Jane [4 ]
Tomlin, Liz [5 ]
Alt, Siobhan [6 ]
Arnold, Jon [7 ]
Bailey, Sarah [8 ]
Beety, Hannah [9 ]
Bender-Atik, Ruth [10 ]
Bryant, Louise [11 ]
Coates, Jen [12 ]
Collinge, Sam [13 ]
Fishburn, Jo [14 ]
Fisher, Jane [15 ]
Fowler, Jan [16 ]
Glanville, Tracey [17 ]
Hallett, Julian [18 ]
Harley-Roberts, Ailith [19 ]
Harrison, Gill [20 ]
Horwood, Karen [21 ]
Hynes, Catriona [22 ]
Kimm, Lindsay [23 ]
McGuinness, Alison [24 ]
Potter, Lucy [25 ,26 ]
Powell, Liane [6 ]
Ramsay, Janelle [27 ]
Shakes, Pieta [28 ]
Sicklen, Roxanne [29 ]
Sims, Alexander [30 ]
Stacey, Tomasina [31 ,32 ]
Sumra, Anushka [33 ]
Thomas, Samantha [34 ]
Todd, Karen [35 ]
Torrington, Jacquie [36 ]
Trueman, Rebecca [10 ]
Walsh, Lorraine [37 ]
Watkins, Katherine [38 ]
Yaz, Gill [39 ]
Hardicre, Natasha K. [2 ]
机构
[1] Univ Leeds, Sch Psychol, Leeds LS2 9JT, W Yorkshire, England
[2] Bradford Teaching Hosp NHS Fdn Trust, Bradford Royal Infirm, Bradford Inst Hlth Res, Yorkshire Qual & Safety Res Grp, Bradford, W Yorkshire, England
[3] Univ New South Wales, Sydney, NSW, Australia
[4] Univ Leeds, Sch Med, Leeds Inst Cardiovasc & Metab Med, Specialist Sci Educ Dept SSED, Worsley Bldg, Leeds, W Yorkshire, England
[5] Bradford Teaching Hosp NHS Fdn Trust, Bradford Royal Infirm, Bradford, W Yorkshire, England
[6] Publ Hlth England, NHS Fetal Anomaly Screening Programme, London, England
[7] Tiny Tickers, Leeds, W Yorkshire, England
[8] Univ Hosp Southampton NHS Fdn Trust, Southampton, Hants, England
[9] Nest Independent Midwifery, Leeds, W Yorkshire, England
[10] Miscarriage Assoc, Wakefield, England
[11] Univ Leeds, Leeds Inst Hlth Sci, Div Psychol & Social Med, Leeds, W Yorkshire, England
[12] SANDS Stillbirth & Neonatal Death Soc, London, England
[13] Univ Hosp Coventry & Warwickshire NHS Trust, Coventry, W Midlands, England
[14] Northumbria Healthcare NHS Fdn Trust, North Tyneside Gen Hosp, North Shields, England
[15] ARC Antenatal Results & Choices, London, England
[16] SOFT UK Support Org Tris 13 18, Birmingham, W Midlands, England
[17] Leeds Teaching Hosp Trust, Leeds Gen Infirm, Dept Fetal & Maternal Med, Leeds, W Yorkshire, England
[18] Downs Syndrome Assoc, London, England
[19] Sunshine & Smiles Leeds Syndrome Network, Leeds, W Yorkshire, England
[20] Soc & Coll Radiographers, London, England
[21] Independent Lay Expert, Leeds, W Yorkshire, England
[22] Sheffield Hallam Univ, Coll Hlth Wellbeing & Life Sci, Sheffield, S Yorkshire, England
[23] Publ Hlth England PHE Screening, London, England
[24] Mid Yorkshire Hosp NHS Trust, Leeds, W Yorkshire, England
[25] MVP Matern Voices Partnership, Leeds, W Yorkshire, England
[26] Womens Hlth Matters, Leeds, W Yorkshire, England
[27] Independent Lay Expert, Huddersfield, W Yorkshire, England
[28] Southern Cross Univ, Sch Hlth & Human Sci, Lismore, NSW, Australia
[29] Royal Free London NHS Fdn Trust, Barnet Hosp, Barnet, England
[30] Manchester Univ Fdn Trust, St Marys Hosp, Manchester, Lancs, England
[31] Univ Huddersfield, Huddersfield, W Yorkshire, England
[32] Univ Huddersfield, Calderdale & Huddersfield Fdn Trust, Huddersfield, W Yorkshire, England
[33] Birmingham City Univ, Sch Hlth Sci, Edgbaston, England
[34] Univ Sydney, Fac Med & Hlth, Sydney Sch Hlth Sci, Sydney, NSW, Australia
[35] Dept Hlth & Social Care, London, England
[36] City Univ London, Sch Hlth Sci, Div Midwifery & Radiog, London, England
[37] Birmingham Childrens Hosp, Birmingham, W Midlands, England
[38] Leeds Teaching Hosp Trust, Leeds Gen Infirm, Antenatal Clin, Leeds, W Yorkshire, England
[39] SHINE Spina Bifida Hydrocephalus Informat Network, Peterborough, England
关键词
Ultrasound; sonography; communication; news delivery; guidelines; training; BAD-NEWS; EXPERIENCES; SONOGRAPHERS; PREFERENCES;
D O I
10.1177/1742271X20935911
中图分类号
R8 [特种医学]; R445 [影像诊断学];
学科分类号
1002 ; 100207 ; 1009 ;
摘要
Background Studies indicate there is a need to improve the delivery of unexpected news via obstetric ultrasound, but there have been few advances in this area. One factor preventing improvement has been a lack of consensus regarding the appropriate phrases and behaviours which sonographers and ultrasound practitioners should use in these situations. Aims To develop consensus guidelines for unexpected news delivery in Early Pregnancy Unit and Fetal Anomaly Screening Programme NHS settings. Methods A workshop was conducted to identify priorities and reach consensus on areas of contention. Contributors included interdisciplinary healthcare professionals, policy experts, representatives from third-sector organisations, lay experts and academic researchers (n = 28). Written and verbal feedback was used to draft initial guidance which was then circulated amongst the wider writing group (n = 39). Revisions were undertaken until consensus was reached. Results Consensus guidelines were developed outlining the behaviours and phrases which should be used during scans where unexpected findings are identified. Specific recommendations included that: honest and clear communication should be prioritised, even with uncertain findings; technical terms should be used, but these should be written down together with their lay interpretations; unless expectant parents use other terminology (e.g. 'foetus'), the term 'baby' should be used as a default, even in early pregnancy; at the initial news disclosure, communication should focus on information provision. Expectant parents should not be asked to make decisions during the scan. Conclusions These recommendations can be used to develop and improve news delivery interventions in obstetric ultrasound settings. The full guidelines can be accessed online as supplemental material and at.
引用
收藏
页码:235 / 245
页数:11
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