Power to the people: a wiki-governance model for biobanks

被引：29
作者：
Dove, Edward S. [1 ]
Joly, Yann [1 ]
Knoppers, Bartha M. [1 ]
机构：
[1] McGill Univ, Fac Med, Dept Human Genet, Ctr Genom & Policy, Montreal, PQ H3A 0G1, Canada
来源：
GENOME BIOLOGY | 2012年 / 13卷 / 05期
关键词：
Biobank; collaboration; genomics; governance; networks; public participation; social media; Web; 2.0; GENETIC RESEARCH; GENOMICS; ANNOTATION; TECHNOLOGY; CHALLENGES; PARTNERS; SCIENCE; DONORS; LEGAL; LAW;
D O I：
10.1186/gb-2012-13-5-158
中图分类号：
Q81 [生物工程学（生物技术）]; Q93 [微生物学];
学科分类号：
071005 ; 0836 ; 090102 ; 100705 ;
摘要：
Biobanks are adopting various modes of public engagement to close the agency gap between participants and biobank builders. We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking.
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页数：8
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