Drawing asthma: An exploration of patients' perceptions and experiences

被引:15
作者
Cheung, Melissa Mei Yin [1 ]
Saini, Bandana [1 ]
Smith, Lorraine [1 ]
机构
[1] Univ Sydney, Fac Pharm, Pharm & Bank Bldg A15,Sci Rd, Camperdown, NSW 2006, Australia
关键词
Drawing; asthma; illness perception; patient experience; COMMON-SENSE MODEL; ILLNESS PERCEPTIONS; PATIENTS PERSPECTIVE; CHRONIC PAIN; QUESTIONNAIRE; CARE; REPRESENTATIONS; VALIDATION; HEALTH;
D O I
10.1080/02770903.2017.1325492
中图分类号
R392 [医学免疫学];
学科分类号
100102 ;
摘要
Objective: As an art form, drawings can facilitate the tangible expression of patients' inner images and feelings in a range of health conditions. However, there are currently no published studies investigating adults' perspectives of asthma using drawings. This study aimed to explore how adults' drawings illustrate their perceptions and experiences of asthma. Methods: Adults with asthma participated in a one-on-one drawing activity. Analysis was grounded in the participants' accounts of their drawing, which were examined alongside the relevant image. A coding approach was used to cluster thematic material and map the data according to the Common-Sense Model of Self-Regulation (CSM). Results: Eighteen participants took part. Three themes emerged: (1) asthma is constrictive and restrictive, (2) feeling alone, feeling different, and (3) the life journey of asthma. The drawings aligned with several domains of the CSM, in particular consequences. The images drawn by the participants and their subsequent discussions highlighted the prominence of the emotional burden of asthma. Conclusions: The drawings provided powerful and evocative communication of the experience of asthma. Future research using drawings can further both healthcare professionals' and patients' understanding of the physical, social and emotional demands of living with asthma, and support the development of asthma self-management practices.
引用
收藏
页码:284 / 293
页数:10
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