Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries

被引：37

作者：

Daley, Tamara C. ^{[1
]}

Singhal, Nidhi ^{[2
]}

Krishnamurthy, Vibha ^{[3
]}

机构：

[1] Westat Corp, Durham, NC 27703 USA

[2] Act Autism Natl Ctr Autism, New Delhi 110015, India

[3] Ummeed Child Dev Ctr, Bombay 400011, Maharashtra, India

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2013年 / 43卷 / 09期

关键词：

Autism spectrum disorder; Ethics; Cross-cultural; ELSI; LMIC; LAMI; Global; India; PERVASIVE DEVELOPMENTAL DISORDERS; INTELLECTUAL DISABILITY; CHILD-DEVELOPMENT; INFORMED-CONSENT; KNOWLEDGE; SCIENCE; ISSUES; EPIDEMIOLOGY; CHALLENGE;

D O I：

10.1007/s10803-012-1750-2

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Autism spectrum disorder (ASD) is being identified in an ever-increasing number of countries, including many that are low or middle income (LMIC). Research conducted in these countries requires awareness of unique ethical issues. Drawing on the experience of two organizations that have been involved in conducting and collaborating in ASD research in India, we describe specific considerations in conducting epidemiological, genetic and treatment studies as well as general principles from the field of multinational clinical research as they apply to the conduct of ASD research. We argue that greater attention to ethical concerns will result in quality studies conducted in LMICs that are also of greatest relevance for families and children with ASD.

引用

页码：2002 / 2014

页数：13

共 105 条

[1] Developing countries need effective ethics review committees [J].