Perceptions of a psychoeducation program for caregivers of persons with dementia at end of life: a qualitative study

被引:9
作者
Durepos, Pamela [1 ]
Kaasalainen, Sharon [1 ]
Carroll, Sandra [1 ,2 ]
Papaioannou, Alexandra [2 ,3 ,4 ]
机构
[1] McMaster Univ, Sch Nursing, Hamilton, ON, Canada
[2] Hamilton Hlth Sci Corp, Hamilton, ON, Canada
[3] McMaster Univ, Geriatr Educ & Res Aging Sci GERAS Ctr, Hamilton, ON, Canada
[4] St Peters Hosp, Hamilton Hlth Sci, Hamilton, ON, Canada
关键词
Dementia and cognitive disorders; qualitative methods; psychosocial interventions; caregiving; ZARIT BURDEN INTERVIEW; PALLIATIVE CARE; FAMILY CAREGIVERS; BEREAVEMENT SERVICES; MENTAL-HEALTH; LOVED ONE; DEATH; PREDICTORS; GRIEF; PREPAREDNESS;
D O I
10.1080/13607863.2017.1399347
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Objectives: Caregivers (CG) of persons with dementia have described positive and challenging experiences related to caring for a person with a neurological disease. This study explored perceived benefits and challenges of a unique psychoeducation program provided at end of life (EOL) jointly attended by current and bereaved CGs of persons with dementia, residing in a hospital Specialized Care Unit. Method: Semi-structured interviews were held with sixteen participants and analyzed with content analysis. Results: Program benefits were perceived by CGs such as: (i) enhanced emotional well-being, (ii) increased feelings of preparedness for EOL, and (iii) personal growth into role models. Within the organization the program was perceived as promoting relationship-centered care and increasing resources. Challenges such as diverse CG preferences, day-time scheduling and limited involvement of unit staff were perceived as barriers. Conclusions: This program fills a gap in care for CGs at the critical stage of EOL with continuity into bereavement. Implications for practice include: increasing engagement of unit staff for involvement and tailoring of the program, and translation of the program into alternative settings like long-term care. Policies outlining the support needs and resources for CGs through EOL within and outside the hospital are necessary to ensure access and continuity of care.
引用
收藏
页码:263 / 271
页数:9
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