The futility of genomic counseling: essential role of electronic health records

被引:16
作者
Belmont, John [1 ]
McGuire, Amy L. [2 ]
机构
[1] Baylor Coll Med, Dept Mol & Human Genet, Houston, TX 77030 USA
[2] Baylor Coll Med, Ctr Med Eth & Hlth Policy, Houston, TX 77030 USA
来源
GENOME MEDICINE | 2009年 / 1卷
关键词
Electronic Health Record; Health Information Technology; Phenotypic Information; Single Nucleotide Polymorphism Database; Care Working Group;
D O I
10.1186/gm48
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
Technological advances over the past several years have dramatically reduced the cost of whole-genome sequencing. At the same time, understanding of the functional significance of genetic variation has advanced considerably. The routine generation of whole-genome sequence data for individual patients will soon be sufficiently cost-effective for widespread clinical integration. Yet, the clinical utility of whole-genome data is currently limited by an inability to effectively process, store, interpret and update genomic data, while at the same time protecting patient privacy. Enter the electronic health record. We propose that without the integration of a dynamic uniform electronic health record, counseling patients on the basis of genome-wide data will be futile.
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页数:3
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