Bereaved Parents' and Siblings' Reports of Legacies Created by Children With Cancer

被引:60
作者
Foster, Terrah L. [1 ]
Gilmer, Mary Jo [2 ]
Davies, Betty [3 ]
Barrera, Maru [4 ,5 ]
Fairclough, Diane [6 ]
Vannatta, Kathryn [7 ]
Gerhardt, Cynthia A. [7 ]
机构
[1] Vanderbilt Univ, Sch Nursing, Nashville, TN 37240 USA
[2] Monroe Carell Jr Childrens Hosp, Pediat Palliat Care Res Tcam, Vanderbilt, TN USA
[3] Univ Calif San Francisco, San Francisco, CA 94143 USA
[4] Hosp Sick Children, Toronto, ON M5G 1X8, Canada
[5] Univ Toronto, Toronto, ON M5S 1A1, Canada
[6] Univ Colorado, Denver, CO 80202 USA
[7] Ohio State Univ, Columbus, OH 43210 USA
基金
美国国家卫生研究院;
关键词
childhood cancer; pediatric death; legacy; bereaved parent; bereaved sibling;
D O I
10.1177/1043454209340322
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
This qualitative study explored bereaved parents' and siblings' reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18 years). Individual interviews were completed at home approximately 10 68 months (SD = 3.48) after the child's death Content analysis of interviews indicated that many children living with cancer did specific things to be remembered. such as making crafts for others, willing away belongings, writing letters to loved ones, and giving special gifts Some children, particularly those who were very ill or died unexpectedly, did not intentionally do or say anything to be remembered. Legacies included bereaved individuals remembering children's qualities, concern for family, and beliefs about afterlife Having advanced cancer appeared to motivate children to influence others' lives and prepare for their own deaths. Children's advice about how to live life inspired bereaved family members. Findings contribute to the current knowledge of legacy-making in children and offer implications for practice and future research.
引用
收藏
页码:369 / 376
页数:8
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