Telephone peer support for women with gynaecological cancer: benefits and challenges for supporters

被引:40
作者
Pistrang, Nancy [1 ]
Jay, Zara [2 ]
Gessler, Sue [3 ,4 ]
Barker, Chris [1 ]
机构
[1] UCL, London WC1E 6BT, England
[2] Royal Free Hampstead NHS Trust, London, England
[3] Univ Coll London Hosp NHS Fdn Trust, London, England
[4] UCL, Inst Womens Hlth, London WC1E 6BT, England
关键词
cancer; oncology; gynaecological cancer; peer support; psychosocial interventions; social support providers; SOCIAL SUPPORT; BREAST-CANCER; HEALTH-CARE; QUALITATIVE RESEARCH; CAREGIVER BURDEN; SELF-ESTEEM; OTHERS; PROGRAMS; PEOPLE;
D O I
10.1002/pon.3080
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Objective Despite the prevalence of one-to-one peer support programmes for people with cancer, little research has examined its impact on the supporters themselves. This qualitative study examined a telephone-delivered one-to-one peer support intervention for women with gynaecological cancer, focussing on supporters' subjective experiences of benefits or costs to themselves and challenges arising in the support process. Methods Semi-structured interviews (N=24) were conducted with 16 women who provided peer support for 24 patients. Transcripts were analysed thematically using the Framework approach. Results Participants described significant personal benefits of providing support, including enhanced self-esteem and well-being, and gaining a new perspective and closure on their cancer experience. They experienced no adverse consequences, but several challenges arose, for example, finding a balance between emotional involvement and detachment, and supporting someone with a poor prognosis or high levels of negative emotion. Their accounts indicated resourcefulness in managing the challenges. Conclusions Providing peer support has a valuable role to play in cancer survivorship; it can facilitate the final stages of moving away from the role of patient and help to promote a more confident post-cancer sense of self. However, readiness to provide support and the availability of backup from health-care professionals appear essential. The findings have implications for the selection, training and supervision of peer supporters. Future studies should routinely measure outcomes for peer supporters. Copyright (c) 2012 John Wiley & Sons, Ltd.
引用
收藏
页码:886 / 894
页数:9
相关论文
共 38 条
[1]  
[Anonymous], 2003, Handbook of psychology: Personality and social psychology, DOI [10.1002/0471264385.wei0519, DOI 10.1002/0471264385.WEI0519]
[2]   Quality criteria under methodological pluralism: Implications for conducting and evaluating research [J].
Barker, C ;
Pistrang, N .
AMERICAN JOURNAL OF COMMUNITY PSYCHOLOGY, 2005, 35 (3-4) :201-212
[3]   Factors associated with caregiver burden in mental illness: A critical review of the research literature [J].
Baronet, AM .
CLINICAL PSYCHOLOGY REVIEW, 1999, 19 (07) :819-841
[4]  
Borkman T., 1990, WORKING SELF HELP GR, P3
[5]   Self-esteem, self-efficacy, and the balance of peer support among persons with chronic mental health problems [J].
Bracke, Piet ;
Christiaens, Wendy ;
Verhaeghe, Mieke .
JOURNAL OF APPLIED SOCIAL PSYCHOLOGY, 2008, 38 (02) :436-459
[6]   Providing social support may be more beneficial than receiving it: Results from a prospective study of mortality [J].
Brown, SL ;
Nesse, RM ;
Vinokur, AD ;
Smith, DM .
PSYCHOLOGICAL SCIENCE, 2003, 14 (04) :320-327
[7]   Designing and evaluating complex interventions to improve health care [J].
Campbell, Neil C. ;
Murray, Elizabeth ;
Darbyshire, Janet ;
Emery, Jon ;
Farmer, Andrew ;
Griffiths, Frances ;
Guthrie, Bruce ;
Lester, Helen ;
Wilson, Phil ;
Kinmonth, Ann Louise .
BMJ-BRITISH MEDICAL JOURNAL, 2007, 334 (7591) :455-459
[8]   Social relationships and health [J].
Cohen, S .
AMERICAN PSYCHOLOGIST, 2004, 59 (08) :676-684
[9]   TOWARD AN INTERACTIONAL DESCRIPTION OF DEPRESSION [J].
COYNE, JC .
PSYCHIATRY-INTERPERSONAL AND BIOLOGICAL PROCESSES, 1976, 39 (01) :28-40
[10]   Peer support telephone calls for improving health [J].
Dale, Jeremy ;
Caramlau, Isabela O. ;
Lindenmeyer, Antje ;
Williams, Susan M. .
COCHRANE DATABASE OF SYSTEMATIC REVIEWS, 2008, (04)