Children with myelomeningocele and independence in the toilet activity: A pilot study

被引:9
作者
Donlau, Marie [1 ]
Mattsson, Sven [2 ]
Glad-Mattsson, Gunilla [2 ]
机构
[1] Cty Council Ostergotland, Vuxenhabiliteringen NSC, S-58185 Linkoping, Sweden
[2] Linkoping Univ, Dept Clin & Expt Med, Div Pediat, S-58183 Linkoping, Sweden
基金
英国医学研究理事会;
关键词
toilet training; spina bifida; self-care; neurogenic bladder and bowel dysfunction; CLEAN INTERMITTENT CATHETERIZATION; SPINA-BIFIDA; PEDIATRIC REHABILITATION; EVERYDAY ACTIVITIES; PERFORMANCE; ADOLESCENTS; QUALITY; LIFE;
D O I
10.3109/11038128.2012.700729
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Objective: Regarding adult life and independence the most common obstacles for young adults with myelomeningocele (MMC) are cognitive dysfunction and difficulties in performing toilet activities. A step-by-step method with goal setting for the training of self-care in toilet activities for children with MMC was evaluated. Method: Twenty-two children with MMC and bladder and bowel dysfunction (12 girls, 10 boys) aged 3-17.2 (m 9.1) were included. The toilet activities were observed at home jointly by an occupational therapist and urotherapist. Goal-setting procedures of self-training were promoted. Observation scores before and after intervention were compared, the goal setting being evaluated on a Goal Attainment Scale (GAS). Results: Fifteen children who trained in self-catheterization had a median observation score of 22 before and 37 after the training period (p = 0.002). Another seven trained in trans-rectal irrigation with a median score of 30 before and 49 after (p = 0.02). As a result of GAS all children improved, of whom 17 reached the goal or even more so than expected. Conclusions: In this pilot study mutual goal setting in a step-by-step training programme based on professional observation of the toilet activity at home showed a better outcome than traditionally performed training in a hospital setting or with traditional habilitation support.
引用
收藏
页码:64 / 70
页数:7
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