New insights into family functioning and quality of life after pediatric liver transplantation

被引:25
作者
Denny, Bianca [1 ]
Beyerle, Kathe [2 ]
Kienhuis, Mandy [1 ]
Cora, Ancuta [1 ]
Gavidia-Payne, Susana [1 ]
Hardikar, Winita [2 ]
机构
[1] RMIT Univ, Discipline Psychol, Melbourne, Vic, Australia
[2] Royal Childrens Hosp, Dept Gastroenterol, Melbourne, Vic, Australia
关键词
pediatric liver transplantation; family functioning; family adjustments; quality of life; ORGAN-TRANSPLANTATION; SINGLE-CENTER; CHILDREN; OUTCOMES;
D O I
10.1111/j.1399-3046.2012.01738.x
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Denny B, Beyerle K, Kienhuis M, Cora A, Gavidia-Payne S, Hardikar W. New insights into family functioning and quality of life after pediatric liver transplantation. Abstract: Thorough research of the medical aspects of pediatric liver transplantation has given way to recent interest in the impact of the transplantation process on the QOL of recipients and their families. In this cross-sectional study, we compared the family functioning and QOL of children (n = 30) aged between three and 16 yr (M = 10.10, s.d. = 3.62) who had received a liver transplant in the previous 112 yr (M = 5.31, s.d. = 3.44) with non-transplant children (n = 33), as reported via parent proxy. Results showed that parents of pediatric liver transplant recipients made significantly more adjustments to family routines to accommodate their children, particularly in relation to childcare. Impaired family functioning was also found to be associated with decreased QOL. These preliminary findings of relative deficits in family functioning may inform psychosocial interventions to assist pediatric liver transplant patients and their families. Further investigation beyond a single-center study incorporating subjective information from pediatric patients and their parents is recommended.
引用
收藏
页码:711 / 715
页数:5
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