Learning about long-term complications of pediatric type 1 diabetes: Parents' preferences

This Internet study surveyed 321 parents of youth with type 1 diabetes about family education regarding long-term complications (LTC). Parents reported their LTC learning experiences and opinions about the amount/timing of LTC education. Parents reported intense worry about LTC, but focused initially on daily management. Most parents want input into their children's LTC education and endorsed diverse methods to motivate children's self-care. Parents felt that LTC education of younger children should be deferred for several months after diagnosis but that LTC education of parents and adolescents should begin soon after diagnosis. A flexible approach respecting parental preference is likely optimal.