The micro-politics of caring: tinkering with person-centered rehabilitation

被引:49
作者
Gibson, Barbara E. [1 ,2 ]
Terry, Gareth [3 ]
Setchell, Jenny [4 ]
Bright, Felicity A. S. [3 ]
Cummins, Christine [3 ]
Kayes, Nicola M. [3 ]
机构
[1] Univ Toronto, Dept Phys Therapy, 160-500 Univ Ave, Toronto, ON M5G 1V7, Canada
[2] Holland Bloorview Kids Rehabil Hosp, Bloorview Res Inst, Toronto, ON, Canada
[3] Auckland Univ Technol, Fac Hlth & Environm Sci, Ctr Person Centred Res, Sch Clin Sci, Auckland, New Zealand
[4] Univ Queensland, Fac Hlth & Behav Sci, Sch Hlth & Rehabil Sci, Brisbane, Qld, Australia
基金
澳大利亚国家健康与医学研究理事会;
关键词
Professional-patient relations; ethics; postmodernism; critical thinking; qualitative research; MUSCULAR-DYSTROPHY; CARE; DISCOURSES; MATTER;
D O I
10.1080/09638288.2019.1587793
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Purpose: In this paper, we critically investigate the implementation of person-centered care with the purpose of advancing philosophical debates regarding the overarching aims and delivery of rehabilitation. While general agreement exists regarding person centered care's core principles, how practitioners reconcile the implementation of these principles with competing practice demands remains an open question. Materials and methods: For the paper, we drew on post-qualitative methods to engage in a process of "diffractive" analysis wherein we analyzed the micro-doings of person-centered care in everyday rehabilitation work. Working from our team members' diverse experiences, traditions, and epistemological commitments, we engaged with data from nine "care events" generated in previous research to interrogate the multiple forces that co-produce care practices. Results: We map our analyses under three categories: scripts mediate practice, securing compliance through "benevolent manipulations", and care(ful) tinkering. In the latter, we explore the notion of tinkering as a useful concept for approaching person centered care. Uncertainty, humility, and doubt in one's expertise are inherent to tinkering, which involves a continual questioning of what to do, what is best, and what is person centered care within each moment of care. The paper concludes with a discussion of the implications for rehabilitation and person-centered care.
引用
收藏
页码:1529 / 1538
页数:10
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