Exploring views on satisfaction with life in young children with chronic illness: An innovative approach to the collection of self-report data from children under 11

被引：10

作者：

Christie, Deborah ^{[1
]}

Romano, Gabriella ^{[1
]}

Barnes, Jacqueline ^{[2
]}

Madge, Nicola ^{[3
]}

Nicholas, David B. ^{[4
]}

Koot, Hans M. ^{[5
]}

Armstrong, Daniel F. ^{[6
,7
]}

Shevlin, Mark ^{[8
]}

Kantaris, Xenya ^{[9
]}

机构：

[1] Univ Coll London Hosp NHS Fdn Trust, London NW1 2PG, England

[2] Univ London, London WC1E 7HU, England

[3] Brunel Univ, Uxbridge UB8 3PH, Middx, England

[4] Univ Toronto, Toronto, ON M5S 1A1, Canada

[5] Vrije Univ Amsterdam, Amsterdam, Netherlands

[6] Univ Miami, Miller Sch Med, Miami, FL 33136 USA

[7] Holtz Childrens Hosp, UM Jackson Mem Med Ctr, Miami, FL USA

[8] Univ Ulster, Coleraine BT52 1SA, Londonderry, North Ireland

[9] UCL, London WC1E 6BT, England

来源：

CLINICAL CHILD PSYCHOLOGY AND PSYCHIATRY | 2012年 / 17卷 / 01期

关键词：

children; chronic illness; focus groups; quality of life; QUALITY-OF-LIFE;

D O I：

10.1177/1359104510392309

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

The objective of this study was to explore young children's views on the impact of chronic illness on their life in order to inform future development of a patient-based self-report health outcome measure. We describe an approach to facilitating self-report views from young children with chronic illness. A board game was designed in order to obtain qualitative data from 39 children with a range of chronic illness conditions and 38 healthy controls ranging in age from 3 to 11 years. The format was effective in engaging young children in a self-report process of determining satisfaction with life and identified nine domains. The board game enabled children aged 5-11 years with chronic illness to describe the effects of living with illness on home, family, friends, school and life in general. It generated direct, non-interpreted material from children who, because of their age, may have been considered unable or limited their ability to discuss and describe how they feel. Obtaining this information for children aged 4 and under continues to be a challenge.

引用

页码：5 / 15

页数：11

共 23 条

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