Formation and psychometric evaluation of a health-related quality of life instrument for children living with HIV in India

被引：4

作者：

Das, Aritra ^{[1
]}

Detels, Roger ^{[1
]}

Afifi, Abdelmonem A. ^{[1
]}

Javanbakht, Marjan ^{[1
]}

Sorvillo, Frank ^{[1
]}

Panda, Samiran ^{[2
]}

机构：

[1] Univ Calif Los Angeles, Fielding Sch Publ Hlth, Los Angeles, CA 90095 USA

[2] Natl Inst Cholera & Enter Dis, Kolkata, India

来源：

JOURNAL OF HEALTH PSYCHOLOGY | 2018年 / 23卷 / 04期

关键词：

children; HIV; quality of life; reliability; validation study; WEST-BENGAL; DISEASE; RELIABILITY; STIGMA; INDEX;

D O I：

10.1177/1359105316671022

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

In-depth interviews and focus group discussions were conducted to inform the development of an instrument to measure the health-related quality of life of children living with HIV. The QOL-CHAI instrument consists of four generic core scales of the Pediatric Quality of Life Inventory and two HIV-targeted scalessymptoms and discrimination. A piloting exercise involving groups of children living with HIV and HIV-negative children born to HIV-infected parents provided evidence for the acceptable psychometric properties and usability of the instrument. It is expected that the QOL-CHAI can serve well as a brief, standardized, and culturally appropriate instrument for assessing health-related quality of life of Indian children living with HIV.

引用

页码：577 / 587

页数：11

共 26 条

[1]

[Anonymous], 2014, HLTH MEASUREMENT SCA

[2]

[Anonymous], 1978, Psychometric theory

[3]

[Anonymous], 2003, WORLD HLTH REPORT 20

[4] A PERCEIVED HEALTH INDEX FOR USE IN PERSONS WITH ADVANCED HIV DISEASE - DERIVATION, RELIABILITY, AND VALIDITY [J].

BOZZETTE, SA ;

HAYS, RD ;

BERRY, SH ;

KANOUSE, DE .

MEDICAL CARE, 1994, 32 (07) :716-731

[5] HEALTH-RELATED QUALITY-OF-LIFE IN PERSONS WITH ACQUIRED-IMMUNE-DEFICIENCY-SYNDROME [J].

CLEARY, PD ;

FOWLER, FJ ;

WEISSMAN, J ;

MASSAGLI, MP ;

WILSON, I ;

SEAGE, GR ;

GATSONIS, C ;

EPSTEIN, A .

MEDICAL CARE, 1993, 31 (07) :569-580

[6] Issues around childhood disclosure of HIV status - findings from a qualitative study in West Bengal, India [J].

Das, A. ;

Detels, R. ;

Javanbakht, M. ;

Panda, S. .

CHILD CARE HEALTH AND DEVELOPMENT, 2016, 42 (04) :553-564

[7]

Das A, 2015, CHILDHOOD DISCLOSURE

[8]

Elkin E., 2012, SAS Global Forum, P1

[9] Measuring health-related quality of life among patients infected with human immunodeficiency virus [J].

Franchi, D ;

Wenzel, RP .

CLINICAL INFECTIOUS DISEASES, 1998, 26 (01) :20-26

[10] MEASURING HEALTH-RELATED QUALITY-OF-LIFE [J].

GUYATT, GH ;

FEENY, DH ;

PATRICK, DL .

ANNALS OF INTERNAL MEDICINE, 1993, 118 (08) :622-629

← 1 2 3 →