Qualitative research of informal caregivers' personal experiences caring for older adults with dementia in Lithuania

被引:17
作者
Kontrimiene, Ausrine [1 ]
Sauseriene, Jolanta [1 ]
Blazeviciene, Aurelija [2 ]
Raila, Gediminas [1 ]
Jaruseviciene, Lina [1 ]
机构
[1] Lithuanian Univ Hlth Sci LUHS, Dept Family Med, Mickeviciaus 9, LT-44307 Kaunas, Lithuania
[2] Lithuanian Univ Hlth Sci LUHS, Dept Nursing & Care, Eiveniu Str 4, LT-50161 Kaunas, Lithuania
关键词
Informal care; Patient care; Mental health services; Primary health care; Social services; Older adults; Dementia; MENTAL-HEALTH; CARE; EASTERN; PEOPLE; BURDEN; MODEL;
D O I
10.1186/s13033-020-00428-w
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
Background: In many communities around the world, informal caregivers of older adults with dementia represent an essential, yet often underappreciated, source of long-term care. The present study aimed to determine the personal experiences of such caregivers, which could be instrumental for developing means of improving the quality of care for both care receivers and their informal caregivers. Methods: Five semi-structured focus-group discussions were held. The participants (n = 31) were all informal caregivers of older adults with dementia. The focus-group discussions were audio-recorded and transcribed verbatim. An inductive approach was used, and thematic data analysis was applied. Results: Four thematic categories were identified: learning caregiving through personal experience; implications of caregiving on social wellbeing; caregivers' contradictory emotions regarding care delivery; and addressing challenges regarding care provision. Conclusions: This study revealed, among the informal caregivers, a variety of experiences, contradicting feelings, and problem-solving strategies relating to the care of older adults with mental disorders. Becoming an effective caregiver involves professional and psychological development. Developing caregiving skills, supportive environment and positive attitude can help facilitate providing care. Caregiving largely impacts the emotional, physical, and social wellbeing of the person; thus, comprehensive approaches are needed to prevent burnout and associated social disadvantages.
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页数:10
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