"I can fight it!": A qualitative study of resilience in people with inflammatory bowel disease

被引:13
|
作者
Luo, Dan [1 ]
Lin, Zheng [1 ,2 ]
Shang, Xing-Chen [1 ]
Li, Sha [1 ]
机构
[1] Nanjing Med Univ, Sch Nursing, Nanjing, Jiangsu, Peoples R China
[2] Nanjing Med Univ, Affiliated Hosp 1, Adm Dept Nursing, Nanjing, Jiangsu, Peoples R China
关键词
Inflammatory bowel disease; Resilience; Psychological; Patients; Qualitative research; OF-LIFE; SELF-MANAGEMENT; HEALTH; STRESS; INTERVIEWS; EFFICACY; OUTCOMES; BURDEN; FOCUS; IBD;
D O I
10.1016/j.ijnss.2018.12.008
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Objectives: This study aimed to understand the resilience experiences in patients with inflammatory bowel disease (IBD) and develop the resilience framework for them. Methods: Semistructured interviews were conducted with 15 patients with IBD who were purposefully recruited from the gastroenterology department of two hospitals in Jiangsu, China to gain diversity in the demographic and clinical characteristics. The data were analyzed using a directed content analysis approach based on the Kumpfer's resilience framework. Results: The resilience framework for patients with IBD was formed from the analysis. This framework was composed of four themes, as follows: (1) complicated factors in the environment, (2) change the environment into a protective one, (3) personality traits, and (4) resilience-related coping. Conclusions: The resilience framework for patients with IBD can effectively characterize the resilience experience of patients during the disease and assist healthcare professionals to understand how patients recover from the disease. More quantitative studies are needed to further explore the influencing factors of resilience and improve resilience in patient with inflammatory Bowel Disease. (C) 2019 Chinese Nursing Association. Production and hosting by Elsevier B.V.
引用
收藏
页码:127 / 133
页数:7
相关论文
共 50 条
  • [41] Is there any food I can eat? Living with inflammatory bowel disease and/or irritable bowel syndrome
    Fletcher, Paula C.
    Schneider, Margaret A.
    CLINICAL NURSE SPECIALIST, 2006, 20 (05) : 241 - 247
  • [42] Identifying dimensions of empowerment in patients with inflammatory bowel disease: a qualitative study
    Zare, Fatemeh
    Ghafari, Mohtasham
    Ramezankhani, Ali
    Kamran, Bagheri Lankarani
    Kavoosi, Amir
    HEALTH EDUCATION RESEARCH, 2020, 35 (06) : 637 - 647
  • [43] Resilience Factors in Paediatric Inflammatory Bowel Disease: Health Care Provider, Parent and Youth Perspectives
    Kohut, Sara Ahola
    Forgeron, Paula
    McMurtry, Meghan
    Weiser, Natalie
    Iuliano, Armanda
    Stinson, Jennifer
    JOURNAL OF CHILD AND FAMILY STUDIES, 2021, 30 (09) : 2250 - 2263
  • [44] The actuality of resilience, social support and quality of life among patients with inflammatory bowel disease in China
    Dai, Weiwei
    Zeng, Yufeng
    Liang, E.
    Zhou, Qiuhong
    Zhang, Lei
    Peng, Jie
    NURSING OPEN, 2022, 9 (04): : 2190 - 2198
  • [45] To tell or not to tell: A qualitative interview study on disclosure decisions among children with inflammatory bowel disease
    Barned, Claudia
    Stinzi, Alain
    Mack, David
    O'Doherty, Kieran C.
    SOCIAL SCIENCE & MEDICINE, 2016, 162 : 115 - 123
  • [46] A qualitative study of patients' experience of living with inflammatory bowel disease: A preliminary focus on the notion of adaptation
    Matini, Lawrence
    Ogden, Jane
    JOURNAL OF HEALTH PSYCHOLOGY, 2016, 21 (11) : 2493 - 2502
  • [47] Anxiety, Depression, and Quality of Life in Parents of Adolescents with Inflammatory Bowel Disease: A Longitudinal Study
    Nomura, Satomi
    Hirano, Yuri
    Takeuchi, Ichiro
    Shimizu, Hirotaka
    Arai, Katsuhiro
    PEDIATRIC GASTROENTEROLOGY HEPATOLOGY & NUTRITION, 2023, 26 (05) : 239 - 248
  • [48] I Am Doing the Best That I Can! Living With Inflammatory Bowel Disease and/or Irritable Bowel Syndrome (Part II)
    Fletcher, Paula C.
    Schneider, Margaret A.
    Van Ravenswaay, Valerie
    Leon, Zaida
    CLINICAL NURSE SPECIALIST, 2008, 22 (06) : 278 - 285
  • [49] Low Subjective Wellbeing Is Associated with Psychological Distress in People Living with Inflammatory Bowel Disease
    Emerson, Catherine
    Fuller-Tyszkiewicz, Matthew
    Orr, Rebecca
    Lyall, Kimina
    Beswick, Lauren
    Olive, Lisa
    Skvarc, David
    Cummins, Robert A.
    Mikocka-Walus, Antonina
    DIGESTIVE DISEASES AND SCIENCES, 2022, 67 (06) : 2059 - 2066
  • [50] The Transitioning From Pediatric to Adult Inflammatory Bowel Disease Services: A Qualitative Study of Adolescents and Their Parents
    Bakry, Mohamed
    Hoffmann, Peta
    Prematunga, Rajivi
    Keightley, Philip
    Subramaniam, Kavitha
    GASTROENTEROLOGY RESEARCH, 2024, 17 (03) : 146 - 149