The subjective experience of subjects diagnosed with celiac disease in adulthood

被引：4

作者：

Houbre, B. ^{[1
]}

Costantini, M. -L ^{[1
]}

Pouchot, J. ^{[2
]}

Tarquinio, C. ^{[1
]}

Muller, L. ^{[1
]}

机构：

[1] Univ Lorraine, UFR SHS Metz, Lab Approches Epidemiol & Psychol Malad Chron, Equipe Psychol Sante EPSaM,APEMaC,EA4360, BP 60228, F-57045 Metz 01, France

[2] Univ Metz Paul Verlaine, Univ Paris Descartes,Sorbonne Paris Cite, Hop Europeen Georges Pompido,AP HP, Lab Approches Epidemiol & Psychol Malad Chron,APE, F-75015 Paris, France

来源：

EUROPEAN REVIEW OF APPLIED PSYCHOLOGY-REVUE EUROPEENNE DE PSYCHOLOGIE APPLIQUEE | 2018年 / 68卷 / 01期

关键词：

Celiac disease; Gluten-free diet; Subjective experience; Qualitative study; Interpretive phenomenological analysis; Adulthood; QUALITY-OF-LIFE; GLUTEN-FREE DIET; RESEARCH ARTICLES; RISK GROUPS; FOLLOW-UP; HEALTH; SYMPTOMS; BEHAVIOR; PATIENT; CONSEQUENCES;

D O I：

10.1016/j.erap.2017.11.002

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

Introduction. - Celiac disease is estimated to affect between 1 in 100 and I in 300 Caucasian subjects. Many quantitative studies have explored the issues encountered by these subjects; however, few studies have addressed the subjective and experiential dimensions of celiac disease. Objective. - The objective of this qualitative exploratory study is to expand current knowledge concerning the subjective experience of celiac disease and of a gluten-free diet in subjects diagnosed with celiac disease in adulthood. Method. - Data was collected through non -directive interviews with 14 subjects aged between 28 and 53 (M = 41.7, SD = 7.48). Results. - An interpretive phenomenological analysis identified various themes related to the experience of illness: (1) history of the disease, (2) symptoms, (3) nutrition, (4) perception of medical experiences, (5) relationships with family and friends, (6) psychological implications, and (7) consequences for daily living. Conclusion. - The results show the importance of developing a "mythology" (concerning the disease's origin) to enable the inclusion of the condition in the individual's on-going personal story. (C) 2017 Elsevier Masson SAS. All rights reserved.

引用

页码：35 / 43

页数：9

共 67 条

[11] Psychological dimensions of celiac disease - Toward an integrated approach [J].