Validation of the Food Allergy Quality of Life-Parental Burden Questionnaire in the UK

被引:32
|
作者
Knibb, Rebecca C. [1 ,2 ]
Stalker, Carol [1 ]
机构
[1] Univ Derby, Dept Psychol, Derby DE22 1GB, England
[2] Univ Derby, Fac Educ Hlth & Sci, Sch Sci, Derby DE22 1GB, England
关键词
Food allergy; Parental burden; Quality of life; Validity; Reliability; OF-LIFE; PEANUT ALLERGY; HEALTH-STATUS; CHILDREN; FAMILIES; IMPACT; PERCEPTIONS;
D O I
10.1007/s11136-012-0295-3
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Food allergy can have a profound effect on quality of life (QoL) of the family. The Food Allergy Quality of Life-Parental Burden Questionnaire (FAQL-PB) was developed on a US sample to assess the QoL of parents with food allergic children. The aim of this study was to examine the reliability and validity of the FAQL-PB in a UK sample and to assess the effect of asking about parental burden in the last week compared with parental burden in general, with no time limit for recall given. A total of 1,200 parents who had at least one child with food allergy were sent the FAQL-PB and the Child Health Questionnaire (CHQ-PF50); of whom only 63 % responded. Factor analysis of the FAQL-PB revealed two factors: limitations on life and emotional distress. The total scale and the two sub-scales had high internal reliability (all alpha > 0.85). There were small to moderate but significant correlations between total FAQL-PB scores and health and parental impact measures on the CHQ-PF50 (p < 0.01). Significantly greater parental burden was reported for the no-time limited compared with the time-limited version (p < 0.01). The FAQL-PB is a reliable and valid measure for use in the UK. The scale could be used in clinic to assess the physical and emotional quality of life in addition to the impact on total quality of life.
引用
收藏
页码:1841 / 1849
页数:9
相关论文
共 50 条
  • [31] Quality of life in childhood, adolescence and adult food allergy: Patient and parent perspectives
    Stensgaard, A.
    Bindslev-Jensen, C.
    Nielsen, D.
    Munch, M.
    DunnGalvin, A.
    CLINICAL AND EXPERIMENTAL ALLERGY, 2017, 47 (04) : 530 - 539
  • [32] Oral Food Challenge and Food Allergy Quality of Life in Caregivers of Children with Food Allergy
    Franxman, Timothy J.
    Howe, Laura
    Teich, Esther
    Greenhawt, Matthew J.
    JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY-IN PRACTICE, 2015, 3 (01) : 50 - 56
  • [33] Oral immunotherapy improves the quality of life of adults with food allergy
    Epstein-Rigbi, Na'ama
    Levy, Michael B.
    Nachshon, Liat
    Koren, Yael
    Goldberg, Michael R.
    Elizur, Arnon
    ALLERGY ASTHMA AND CLINICAL IMMUNOLOGY, 2024, 20 (01):
  • [34] Development and validation of a spina bifida-specific pediatric quality of life questionnaire: the Spina Bifida Pediatric Questionnaire, SBPQ
    Vande Velde, Saskia
    Laridaen, Jolien
    Van Hoecke, Eline
    Van Biervliet, Stephanie
    De Bruyne, Ruth
    Van Winckel, Myriam
    Goubert, Liesbet
    CHILDS NERVOUS SYSTEM, 2016, 32 (01) : 105 - 110
  • [35] Development and validation of the self-administered Food Allergy Quality of Life Questionnaire for adolescents
    Blok, Bertine M. J. Flokstra-de
    DunnGalvin, Audrey
    Viieg-Boerstra, Berber J.
    Elberink, Joanne N. G. Oude
    Duiverman, Eric J.
    Hourihane, Jonathan O'Brien
    Dubois, Anthony E. J.
    JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY, 2008, 122 (01) : 139 - 144
  • [36] Health-Related Quality of Life in Children With Food Allergy and Their Parents: A Systematic Review of the Literature
    Morou, Z.
    Tatsioni, A.
    Dimoliatis, I. D. K.
    Papadopoulos, N. G.
    JOURNAL OF INVESTIGATIONAL ALLERGOLOGY AND CLINICAL IMMUNOLOGY, 2014, 24 (06) : 382 - 395
  • [37] Validation of the food allergy quality of life questionnaire series in Chinese families with food-allergic children
    Leung, Agnes Sze Yin
    Cheng, Nam Sze
    Li, Rebecca Ming Yan
    Li, Pui Fung
    Lee, Yat Laam
    Fu, Tik Wai
    Flokstra-de Blok, Bertine
    Leung, Ting Fan
    PEDIATRIC ALLERGY AND IMMUNOLOGY, 2022, 33 (10)
  • [38] Deriving health utility indices from a food allergy quality-of-life questionnaire
    Chen, Gang
    DunnGalvin, Audrey
    Greenhawt, Matthew
    Shaker, Marcus
    Campbell, Dianne E.
    PEDIATRIC ALLERGY AND IMMUNOLOGY, 2021, 32 (08) : 1773 - 1780
  • [39] An update on the impact of food allergy on anxiety and quality of life
    Shaker, Marcus S.
    Schwartz, Jonathan
    Ferguson, Morgan
    CURRENT OPINION IN PEDIATRICS, 2017, 29 (04) : 497 - 502
  • [40] Exploring quality of life in families of children living with and without a severe food allergy
    Valentine, Althea Z.
    Knibb, Rebecca C.
    APPETITE, 2011, 57 (02) : 467 - 474