The Evolution of Quality of Life Assessment and Use in Dermatology

被引：80

作者：

Chernyshov, Pavel V. ^{[1
]}

机构：

[1] Natl Med Univ, Dept Dermatol & Venereol, Bulvar Shevchenko 13, UA-01601 Kiev, Ukraine

来源：

DERMATOLOGY | 2019年 / 235卷 / 03期

关键词：

Quality of life; Dermatology; Guidelines; Core outcome sets; Quimp; EADV TASK-FORCE; ATOPIC-DERMATITIS; INDEX CDLQI; CHILDREN; INSTRUMENTS; IMPAIRMENT; MANAGEMENT; PSORIASIS; DISEASE; IMPACT;

D O I：

10.1159/000496923

中图分类号：

R75 [皮肤病学与性病学];

学科分类号：

100206 ;

摘要：

The creation of the Dermatology Life Quality Index (DLQI) questionnaire facilitated many studies on the impact of skin diseases on patients' quality of life (QoL). Many national and international guidelines recommend QoL assessment in dermatology, and some of them contain detailed recommendations on treatment goals and changes of treatment approaches based on DLQI score banding and minimal clinically important difference. The methodology of QoL instrument development and validation is constantly becoming more rigorous. Initiatives on selection of core outcome sets for skin diseases are focused on clinical trials but may also be beneficial for clinicians. There are various benefits of using QoL information in clinical practice, but experience of this is very limited at the moment. QoL assessment in dermatology is a rapidly developing field with a gradual shift from theory to practice. (C) 2019 S. Karger AG, Basel

引用

页码：167 / 174

页数：8

共 68 条

[1]

[Anonymous], 2007, PSYCHOSOC MED

[2] Definition of psoriasis severity in routine clinical care: current guidelines fail to capture the complexity of long-term psoriasis management [J].

Augustin, M. ;

Langenbruch, A. ;

Gutknecht, M. ;

Reich, K. ;

Koerber, A. ;

Maassen, D. ;

Mrowietz, U. ;

Thaci, D. ;

von Kiedrowski, R. ;

Radtke, M. A. .

BRITISH JOURNAL OF DERMATOLOGY, 2018, 179 (06) :1385-1391

[3] The Family Dermatology Life Quality Index: measuring the secondary impact of skin disease [J].

Basra, M. K. A. ;

Sue-Ho, R. ;

Finlay, A. Y. .

BRITISH JOURNAL OF DERMATOLOGY, 2007, 156 (03) :528-538

[4] Conceptualization, development and validation of T-QoL© (Teenagers' Quality of Life): a patient-focused measure to assess quality of life of adolescents with skin diseases [J].

Basra, M. K. A. ;

Salek, M. S. ;

Fenech, D. ;

Finlay, A. Y. .

BRITISH JOURNAL OF DERMATOLOGY, 2018, 178 (01) :161-175

[5] A comparative study of impairment of quality of life in children with skin disease and children with other chronic childhood diseases [J].

Beattie, PE ;

Lewis-Jones, MS .

BRITISH JOURNAL OF DERMATOLOGY, 2006, 155 (01) :145-151

[6] Psychosocial predictors of survival in metastatic melanoma [J].

Butow, PN ;

Coates, AS ;

Dunn, SM .

JOURNAL OF CLINICAL ONCOLOGY, 1999, 17 (07) :2256-2263

[7] Report from the fifth international consensus meeting to harmonize core outcome measures for atopic eczema/dermatitis clinical trials (HOME initiative) [J].

Chalmers, J. R. ;

Thomas, K. S. ;

Apfelbacher, C. ;

Williams, H. C. ;

Prinsen, C. A. ;

Spuls, P. I. ;

Simpson, E. ;

Gerbens, L. A. A. ;

Boers, M. ;

Barbarot, S. ;

Stalder, J. F. ;

Abuabara, K. ;

Aoki, V. ;

Ardeleanu, M. ;

Armstrong, J. ;

Bang, B. ;

Berents, T. L. ;

Burton, T. ;

Butler, L. ;

Chubachi, T. ;

Cresswell-Melville, A. ;

DeLozier, A. ;

Eckert, L. ;

Eichenfield, L. ;

Flohr, C. ;

Futamura, M. ;

Gadkari, A. ;

Gjerde, E. S. ;

van Halewijn, K. F. ;

Hawkes, C. ;

Howells, L. ;

Howie, L. ;

Humphreys, R. ;

Ishii, H. A. ;

Kataoka, Y. ;

Katayama, I. ;

Kouwenhoven, W. ;

Langan, S. M. ;

Leshem, Y. A. ;

Merhand, S. ;

Mina-Osorio, P. ;

Murota, H. ;

Nakahara, T. ;

Nunes, F. P. ;

Nygaard, U. ;

Nygardas, M. ;

Ohya, Y. ;

Ono, E. ;

Rehbinder, E. ;

Rogers, N. K. .

BRITISH JOURNAL OF DERMATOLOGY, 2018, 178 (05) :E332-E341

[8] EADV Taskforce's recommendations on measurement of health-related quality of life in paediatric dermatology [J].

Chernyshov, P. ;

de Korte, J. ;

Tomas-Aragones, L. ;

Lewis-Jones, S. .

JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2015, 29 (12) :2306-2316

[9] Creation and pilot test results of the dermatology-specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life [J].

Chernyshov, P. V. ;

Boffa, M. J. ;

Corso, R. ;

Pustisek, N. ;

Marinovic, B. ;

Manolache, L. ;

Salavastru, C. M. ;

Tiplica, G. S. ;

Kakourou, T. ;

Alexopoulos, A. ;

Nasi, L. ;

Wojciechowska-Zdrojowy, M. ;

Seniuta, J. ;

Szepietowski, J. C. ;

Erkens, A. ;

Foelster-Holst, R. ;

Sampogna, F. ;

Chernyshov, A. V. ;

Jemec, G. B. ;

Esmann, S. ;

Mazereeuw-Hautier, J. ;

Merlos, M. ;

Tomas-Aragones, L. ;

Marron, S. E. .

JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2018, 32 (12) :2288-2294

[10] Which acne treatment has the best influence on health-related quality of life? Literature review by the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient Oriented Outcomes [J].

Chernyshov, P. V. ;

Tomas-Aragones, L. ;

Manolache, L. ;

Svensson, A. ;

Marron, S. E. ;

Evers, A. W. M. ;

Bettoli, V. ;

Jemec, G. B. ;

Szepietowski, J. C. .

JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2018, 32 (09) :1410-1419

← 1 2 3 4 5 6 7 →