Effects of Visual Aids for End-of-Life Care on Decisional Capacity of People With Dementia

被引:20
|
作者
Chang, Wan-Zu D. [1 ]
Bourgeois, Michelle S. [2 ]
机构
[1] Ohio State Univ, Dept Speech & Hearing Sci, Columbus, OH 43210 USA
[2] Univ S Florida, Dept Commun Sci & Disorders, Tampa, FL 33620 USA
关键词
ALZHEIMERS-DISEASE; PALLIATIVE CARE; MAKING CAPACITY; INFORMED-CONSENT; COMPETENCE; DISABILITY; STRATEGIES; MANAGEMENT; LEGAL;
D O I
10.1044/2019_AJSLP-19-0028
中图分类号
R36 [病理学]; R76 [耳鼻咽喉科学];
学科分类号
100104 ; 100213 ;
摘要
Purpose: This study evaluated the decision-making capacity of persons with mild and moderate dementia on end-of-life care when using visual aids. A secondary purpose was to learn whether the judges naive to the experimental conditions would rate participants' decisional abilities as better when augmented by visual aids, thereby validating the behavioral changes due to the use of these external support. Method: Twenty older adults with mild and moderate dementia demonstrated Understanding, Expressing a Choice, Reasoning, and Appreciation of 2 medical vignettes under 2 counterbalanced conditions: verbal alone or verbal with visual aids. Transcripts were analyzed and scored to measure decisional skills. Twelve judges rated participants' decisional abilities using a 7-point Likert scale. Results: Participants demonstrated significantly better overall decisional capacity in Understanding, Reasoning, and Appreciation when supported by visual aids during the decision-making process. No significant differences between conditions were found in Expressing a Choice, the decisional skill Logical Sequence under Reasoning, and Acknowledgment under Appreciation. Overall, the judges' ratings validated these outcomes; the judges' ratings reflected greater agreement in the visual condition than in the verbal condition. Conclusions: Findings indicated that visual aids (a) improved the decision-making capacity of individuals with dementia in comprehending medical information, employing supportive reasons, and relating this information to his or her own situation and (b) contain the potential for judges who majored or are majoring in speech-language pathology to reach a stronger consensus when determining the decision-making capacity of individuals with dementia.
引用
收藏
页码:185 / 200
页数:16
相关论文
共 50 条
  • [1] RECOMMENDATIONS ON END-OF-LIFE CARE FOR PEOPLE WITH DEMENTIA
    Gove, D.
    Sparr, S.
    Dos Santos Bernardo, A. M. C.
    Cosgrave, M. P.
    Jansen, S.
    Martensson, B.
    Pointon, B.
    Tudose, C.
    Holmerova, I.
    JOURNAL OF NUTRITION HEALTH & AGING, 2010, 14 (02): : 136 - 139
  • [2] Improving end-of-life care for people with dementia
    Sampson, Elizabeth L.
    Burns, Alistair
    Richards, Mike
    BRITISH JOURNAL OF PSYCHIATRY, 2011, 199 (05) : 357 - 359
  • [3] Recommendations on end-of-life care for people with dementia
    D. Gove
    S. Sparr
    A.M.C. Dos Santos Bernardo
    M.P. Cosgrave
    S. Jansen
    B. Martensson
    B. Pointon
    C. Tudose
    I. Holmerova
    The journal of nutrition, health & aging, 2010, 14 : 136 - 139
  • [4] End-of-life care for people with dementia living in a care home
    Taylor, Eleanor
    Pitfield, C.
    Jacobs, H.
    Morris, J.
    INTERNATIONAL PSYCHOGERIATRICS, 2011, 23 : S355 - S356
  • [5] The end-of-life Namaste care program for people with dementia
    Shannon-Ramsey, Vivian
    JOURNAL OF SOCIAL WORK IN END-OF-LIFE & PALLIATIVE CARE, 2009, 5 (1-2) : 108 - +
  • [6] The End-of-Life Namaste Care Program for People with Dementia
    Takai, Valerie
    PHYSICAL & OCCUPATIONAL THERAPY IN GERIATRICS, 2009, 27 (03) : 267 - 268
  • [7] THE END-OF-LIFE NAMASTE CARE PROGRAM FOR PEOPLE WITH DEMENTIA
    McKinley, Kathryn
    ACTIVITIES ADAPTATION & AGING, 2008, 32 (3-4) : 267 - 269
  • [8] End-of-life care in dementia
    Arcand, Marcel
    JOURNAL OF PALLIATIVE CARE, 2006, 22 (03) : 201 - 201
  • [9] End-of-life care and dementia
    Robinson, Louise
    Hughes, Julian
    Daley, Sarah
    Keady, John
    Ballard, Clive
    Volicer, Ladislav
    REVIEWS IN CLINICAL GERONTOLOGY, 2005, 15 (02) : 135 - 148
  • [10] End-of-life care and dementia
    Arcand, Marcel
    JOURNAL OF PALLIATIVE CARE, 2006, 22 (03) : 208 - 208