Administration Burden Associated With Recombinant Human Growth Hormone Treatment: Perspectives of Patients and Caregivers

被引：36
|
作者：
Kremidas, Dianne [1 ]
Wisniewski, Tami [2 ]
Divino, Victoria M. [3 ]
Bala, Kaysen [2 ]
Olsen, Maryann [2 ]
Germak, John [2 ]
Aagren, Mark [2 ]
Holot, Natalia [2 ]
Lee, Won Chan [3 ]
机构：
[1] MAG Fdn, Oak Pk, IL USA
[2] Novo Nordisk, Clin Med & Regulatory Affairs, Princeton, NJ USA
[3] IMS Consulting Grp, Alexandria, VA USA
来源：
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES | 2013年 / 28卷 / 01期
关键词：
Recombinant human growth hormone; Growth hormone deficiency; Web survey; Patients; Caregivers; Treatment practices; Treatment experience; Treatment administration; Treatment storage; Treatment burden; OPEN-LABEL; THERAPY; DEVICE; CHOICE;
D O I：
10.1016/j.pedn.2011.12.006
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
Patients treated with recombinant human growth hormone (rhGH) for growth hormone disorders follow a challenging treatment schedule. This study assessed patient and caregiver experiences with rhGH therapy treatment regimens. Patients 13 years or older with growth hormone deficiency and caregivers completed Web-based surveys. A total of 61 patients and 239 caregivers participated. Storage of rhGH was considered burdensome by more than a third. More than 51% considered storage "somewhat more" to "much more of a burden" relative to the burden while not traveling. "Away from home or traveling" was the most frequently endorsed reason for missing a dose. rhGH treatment while traveling is challenging because of rhGH storage burden. (C) 2013 Elsevier Inc. All rights reserved.
引用
收藏
页码：55 / 63
页数：9
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