The Needs of Hospitalized Patients With Autism Spectrum Disorders: A Parent Survey

被引：43

作者：

Kopecky, Kimberly ^{[1
]}

Broder-Fingert, Sarabeth ^{[2
]}

Iannuzzi, Dorothea ^{[3
]}

Connors, Susan ^{[1
,4
]}

机构：

[1] Harvard Univ, Sch Med, Boston, MA 02114 USA

[2] Massachusettes Gen Hosp Children, Boston, MA USA

[3] Harvard Vanguard Med Associates, Simmons Coll Sch Social Work, Boston, MA USA

[4] Massachusetts Gen Hosp, Lexington, MA USA

来源：

CLINICAL PEDIATRICS | 2013年 / 52卷 / 07期

关键词：

autism; inpatient; hospitalization; parent; survey; HEALTH-CARE UTILIZATION; NATIONAL PROFILE; UNITED-STATES; CHILDREN; PAIN; EXPENDITURES; INDIVIDUALS; EXPERIENCES; FAMILIES;

D O I：

10.1177/0009922813485974

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

Objective. This survey assessed the in-hospital needs of patients diagnosed with autism spectrum disorders (ASDs). Methods. Parents were recruited to complete a 21-item survey about the needs of their child with an ASD while in the hospital. ASD diagnosis was reported by parents at the time of the survey. The results of the survey were analyzed and evaluated in 3 distinct categories of need. Results. We documented a range of responses associated with ASD-specific needs during hospitalization. Common concerns included child safety and the importance of acknowledging individual communication methods. Conclusions. In a population of children with ASDs, parents report a diverse range of needs while in the hospital. These data support the concept that a pragmatic assessment of individual communication and sensory differences is likely to be essential in the development of an appropriate inpatient care plan.

引用

页码：652 / 660

页数：9