Managing childhood eczema: qualitative study exploring carers' experiences of barriers and facilitators to treatment adherence

被引:75
作者
Santer, Miriam [1 ]
Burgess, Hana [1 ]
Yardley, Lucy [2 ]
Ersser, Steven J. [3 ]
Lewis-Jones, Sue [4 ,5 ]
Muller, Ingrid [2 ]
Hugh, Catherine [6 ]
Little, Paul [1 ]
机构
[1] Univ Southampton, Southampton SO9 5NH, Hants, England
[2] Univ Southampton, Sch Psychol, Southampton SO9 5NH, Hants, England
[3] Univ Hull, Fac Hlth & Social Care, Kingston Upon Hull HU6 7RX, N Humberside, England
[4] Univ Dundee, Ninewells Hosp, Dundee DD1 4HN, Scotland
[5] Univ Dundee, Dept Dermatol, Dundee DD1 4HN, Scotland
[6] Univ Southampton, Fac Med, Southampton SO9 5NH, Hants, England
基金
美国国家卫生研究院;
关键词
adherence; atopic eczema; children; concordance; dermatitis; dermatology nursing; qualitative research; ATOPIC-DERMATITIS; PEDIATRIC ADHERENCE; TOPICAL THERAPIES; CHILDREN; PARENTS; PHYSIOTHERAPY; PERSPECTIVES; CONCORDANCE; MANAGEMENT; KNOWLEDGE;
D O I
10.1111/jan.12133
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
AimTo explore parents and carers' experiences of barriers and facilitators to treatment adherence in childhood eczema BackgroundChildhood eczema is common and causes significant impact on quality of life for children and their families, particularly due to sleep disturbance and itch. Non-adherence to application of topical treatments is the main cause of treatment failure. DesignQualitative interview study. MethodsQualitative interviews were carried out with 31 carers from 28 families of children with eczema. Participants were recruited through primary care and included if they had a child aged 5 or less with a diagnosis of eczema. Interviews were carried out between December 2010-May 2011. Data were analysed using a constant comparative approach. FindingsBarriers to treatment adherence included carer beliefs around eczema treatment, the time consuming nature of applying topical treatments, and child resistance to treatment. Families employed a range of strategies in an attempt to work around children's resistance to treatment with varying success. Strategies included involving the child in treatment, distracting the child during treatment, or making a game of it, using rewards, applying treatment to a sleeping child or, in a few cases, physically restraining the child. Some carers reduced frequency of applications in an attempt to reduce child resistance. ConclusionsRegular application of topical treatments to children is an onerous task, particularly in families where child resistance develops. Early recognition and discussion of resistance and better awareness of the strategies to overcome this may help carers to respond positively and avoid establishing habitual confrontation.
引用
收藏
页码:2493 / 2501
页数:9
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