GUILD: GUidance for Information about Linking Data sets

被引:89
作者
Gilbert, Ruth [1 ]
Lafferty, Rosemary [2 ]
Hagger-Johnson, Gareth [2 ]
Harron, Katie [3 ]
Zhang, Li-Chun [4 ]
Smith, Peter [4 ]
Dibben, Chris [5 ]
Goldstein, Harvey [2 ]
机构
[1] UCL, Great Ormond St Inst Child Hlth, Adm Data Res Ctr England, Clin Epidemiol, London, England
[2] UCL, Great Ormond St Inst Child Hlth, Adm Data Res Ctr England, London, England
[3] London Sch Hyg & Trop Med, Dept Hlth Serv Res & Policy, London, England
[4] Univ Southampton, Dept Social Stat & Demog, Social Stat, Southampton, Hants, England
[5] Univ Edinburgh, Adm Data Res Ctr Scotland, Geog, Edinburgh, Midlothian, Scotland
基金
英国经济与社会研究理事会;
关键词
epidemiology; health services; management and policy; LINKED BIRTH RECORDS; LINKAGE; MORTALITY; PRIVACY;
D O I
10.1093/pubmed/fdx037
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Record linkage of administrative and survey data is increasingly used to generate evidence to inform policy and services. Although a powerful and efficient way of generating new information from existing data sets, errors related to data processing before, during and after linkage can bias results. However, researchers and users of linked data rarely have access to information that can be used to assess these biases or take them into account in analyses. As linked administrative data are increasingly used to provide evidence to guide policy and services, linkage error, which disproportionately affects disadvantaged groups, can undermine evidence for public health. We convened a group of researchers and experts from government data providers to develop guidance about the information that needs to be made available about the data linkage process, by data providers, data linkers, analysts and the researchers who write reports. The guidance goes beyond recommendations for information to be included in research reports. Our aim is to raise awareness of information that may be required at each step of the linkage pathway to improve the transparency, reproducibility, and accuracy of linkage processes, and the validity of analyses and interpretation of results.
引用
收藏
页码:191 / 198
页数:8
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