Pandemics, privacy, and public health research

被引：6

作者：

Bernier, Alexander ^{[1
]}

Knoppers, Bartha Maria ^{[1
]}

机构：

[1] McGill Univ, Ctr Genom & Policy, Fac Med, 740 Ave Dr Penfield,Suite 5200, Montreal, PQ H3A 0G1, Canada

来源：

CANADIAN JOURNAL OF PUBLIC HEALTH-REVUE CANADIENNE DE SANTE PUBLIQUE | 2020年 / 111卷 / 04期

关键词：

COVID-19; Data sharing; Health policy; Health governance; Pandemic; Privacy;

D O I：

10.17269/s41997-020-00368-5

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Sharing data expediently for pandemic response purposes exposes healthcare providers in Canada to significant regulatory uncertainty. Duplicative and contradictory ethical and legal duties flowing from overlapping sources can stifle flows of medical data among clinicians, researchers, and institutions. Authorities should support caregivers and accelerate research by providing clear guidance to the health sector. Institutions should foster robust data stewardship and standardize their practices to those recognized among the international health informatics community. Reform is critical to ensuring Canadian healthcare providers can deliver efficient health responses that are integrated with dispersed and disparate national and international approaches.

引用

页码：454 / 457

页数：4

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