Family Quality of Life in Foster and Adoptive Families of People with IDD

被引:1
作者
Garcia-Sanjuan, Noemi [1 ]
Berastegui, Ana [2 ]
Mota, Rosalia [2 ]
机构
[1] Univ Int La Rioja, Logrono, Spain
[2] Comillas Pontifical Univ, Madrid, Spain
关键词
adoption; foster care; intellectual and developmental disabilities; special needs children; quality of life; SPECIAL-NEEDS; DEVELOPMENTAL-DISABILITIES; INTELLECTUAL DISABILITY; DOWN-SYNDROME; DISABLED-CHILDREN; YOUNG-PEOPLE; PARENTS; ADULTHOOD; OUTCOMES; VALIDATION;
D O I
10.16993/sjdr.975
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
The aim of this study is to examine the family quality of life (FQoL) in foster and adoptive families of people with intellectual and developmental disabilities (IDD). Adoption or foster care and IDD can have a specific impact on families, creating particular support needs. This study assesses self-reported parent FQoL and its relations with placement and disability factors in a convenience snowball sample of 62 foster and adoptive families of children, adolescents, and young adults with IDD in Spain. The FQoL ranged between moderate and entirely satisfactory (M = 92.2; SD = 16.9). Families of people with Down Syndrome (DS) and in special placements showed higher FQoL scores than those without other diagnoses or in ordinary placements. In contrast, increased mental health needs can explain a decrease in FQoL (beta = -0.337, t = -2.729, p = 0.008). These families also show specific support needs essential for FQoL, including accurate information and training processes, and particular attention and support when a disability is identified after placement.
引用
收藏
页码:378 / 390
页数:13
相关论文
共 70 条
[31]   ADOPTIVE PARENTS TO CHILDREN WITH SEVERE DEVELOPMENTAL-DISABILITIES - A PROFILE [J].
GOETTING, A ;
GOETTING, MG .
CHILDREN AND YOUTH SERVICES REVIEW, 1993, 15 (06) :489-506
[32]   Adoption of children with disabilities: an exploration of the issues for adoptive families [J].
Good, Gretchen A. .
EARLY CHILD DEVELOPMENT AND CARE, 2016, 186 (04) :642-661
[33]   Families of persons with Down syndrome: New perspectives, findings, and research and service needs [J].
Hodapp, Robert M. .
MENTAL RETARDATION AND DEVELOPMENTAL DISABILITIES RESEARCH REVIEWS, 2007, 13 (03) :279-287
[34]   Assessing family outcomes: Psychometric evaluation of the beach center family quality of life scale [J].
Hoffman, Lesa ;
Marquis, Janet ;
Poston, Denise ;
Summers, Jean Ann ;
Turnbull, Ann .
JOURNAL OF MARRIAGE AND FAMILY, 2006, 68 (04) :1069-1083
[35]   An in-depth analysis of domestically adopted children with special needs and their biological mothers [J].
Hussey, David L. .
JOURNAL OF SOCIAL WORK, 2012, 12 (05) :528-544
[36]  
Johnson DE, 2020, ROUT INT HANDB, P188
[37]   Behavior problems and mental health referrals of international adoptees - A meta-analysis [J].
Juffer, F ;
van IJzendoorn, MH .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2005, 293 (20) :2501-2515
[38]  
Lazarus C., 2002, ADOPT Q, V6, P7, DOI DOI 10.1300/J145V06N01_
[39]   Transition to adulthood for young people with intellectual disability: the experiences of their families [J].
Leonard, Helen ;
Foley, Kitty-Rose ;
Pikora, Terri ;
Bourke, Jenny ;
Wong, Kingsley ;
McPherson, Lyn ;
Lennox, Nick ;
Downs, Jenny .
EUROPEAN CHILD & ADOLESCENT PSYCHIATRY, 2016, 25 (12) :1369-1381
[40]   International and domestic adoption: Child, parents, and family adjustment [J].
LevyShiff, R ;
Zoran, N ;
Shulman, S .
INTERNATIONAL JOURNAL OF BEHAVIORAL DEVELOPMENT, 1997, 20 (01) :109-129