Reification and assent in research involving those who lack capacity

被引:9
作者
Smajdor, Anna [1 ,2 ]
机构
[1] Univ Oslo, IFIKK, Oslo, Norway
[2] Univ Oslo, IFIKK, N-0315 Oslo, Norway
关键词
Capacity; Ethics-; Research; Informed Consent; Personal Autonomy; Ethics Committees; YOUNG-PEOPLE; GUIDANCE;
D O I
10.1136/jme-2022-108710
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
In applied ethics, and in medical treatment and research, the question of how we should treat others is a central problem. In this paper, I address the ethical role of assent in research involving human beings who lack capacity. I start by thinking about why consent is ethically important, and consider what happens when consent is not possible. Drawing on the work of the German philosopher Honneth, I discuss the concept of reification-a phenomenon that manifests itself when we fail to observe or respond to our fellow humans' need for recognition. I suggest that assent is a way of responding to this moral need for recognition, which exists independently of cognitive capacity. I will look at the circumstances in which consent cannot be obtained from human beings, and ask whether some of the same ethically important considerations that underpin the need for consent might be achieved through seeking assent. I discuss the ways in which this might be beneficial for researchers, for prospective research participants and for society at large.
引用
收藏
页码:474 / 480
页数:7
相关论文
共 24 条
[1]   World Medical Association Declaration of Helsinki Ethical Principles for Medical Research Involving Human Subjects [J].
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2013, 310 (20) :2191-2194
[2]   Co-production and pilot of a structured interview using Talking Mats® to survey the television viewing habits and preferences of adults and young people with learning disabilities [J].
Bunning, Karen ;
Alder, Ruth ;
Proudman, Lydia ;
Wyborn, Harriet .
BRITISH JOURNAL OF LEARNING DISABILITIES, 2017, 45 (01) :1-11
[3]   Clinicians' knowledge of informed consent [J].
Fisher-Jeffes, Lisa ;
Barton, Charlotte ;
Finlay, Fiona .
JOURNAL OF MEDICAL ETHICS, 2007, 33 (03) :181-184
[4]  
Honneth A., 2008, REIFICATION NEW LOOK, P18
[5]  
Hougham Gavin W, 2003, IRB, VSuppl 25, pS26, DOI 10.2307/3564119
[6]   A systematic review and narrative synthesis of the research provisions under the Mental Capacity Act (2005) in England and Wales: Recruitment of adults with capacity and communication difficulties [J].
Jimoh, Oluseyi Florence ;
Ryan, Hayley ;
Killett, Anne ;
Shiggins, Ciara ;
Langdon, Peter E. ;
Heywood, Rob ;
Bunning, Karen .
PLOS ONE, 2021, 16 (09)
[7]   Chimpanzees as vulnerable subjects in research [J].
Johnson, Jane ;
Barnard, Neal D. .
THEORETICAL MEDICINE AND BIOETHICS, 2014, 35 (02) :133-141
[8]  
Kant I., 1948, MORAL LAW, P91
[9]   Why Is Therapeutic Misconception So Prevalent? [J].
Lidz, Charles W. ;
Albert, Karen ;
Appelbaum, Paul ;
Dunn, Laura B. ;
Overton, Eve ;
Pivovarova, Ekaterina .
CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS, 2015, 24 (02) :231-241
[10]  
Mackenzie Catriona., 2014, Vulnerability: New essays in ethics and feminist philosophy, DOI [10.1093/acprof:oso/9780199316649.003.0001, DOI 10.1093/ACPROF:OSO/9780199316649.001.0001]