Co-design and development of a multi-component anxiety management programme for people with an intellectual disability

被引:5
作者
Acton, Daniel James [1 ,2 ,3 ]
Waites, Robert [4 ]
Jaydeokar, Sujeet [2 ,3 ,5 ]
Jones, Steven [3 ]
机构
[1] Cheshire & Wirral Partnership NHS Fdn Trust, Community Learning Disabil Serv, Chester, England
[2] Ctr Autism Neurodev Disorders & Intellectual Disab, Chester, England
[3] Univ Chester, Chester Med Sch, Chester, England
[4] Cheshire & Wirral Partnership NHS Fdn Trust, Chester, England
[5] Cheshire & Wirral Partnership NHS Fdn Trust, Learning Disabil Neurodev Disorders & Acquired Bra, Chester, England
关键词
Collaboration; Psychological therapy; Lived experience; Mental health; Co-production; Learning disability; COGNITIVE-BEHAVIORAL THERAPY; LIFE EVENTS; ADULTS; DEPRESSION; PREVALENCE; DISORDERS; MINDFULNESS; SYMPTOMS; HEALTH;
D O I
10.1108/AMHID-04-2022-0017
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
PurposeThis paper aims to understand the lived experience of people with intellectual disability of their anxiety and of being co-design partners in developing a multi-component approach to the management of anxiety. Design/methodology/approachThe development of an anxiety manual and programme was part of a service development which allowed existing and established psychological therapies to be adapted for people with intellectual disability. A qualitative approach was used to better understand the views of people who experienced anxiety on a daily basis. The feedback generated was used to make modifications to the manuals and the anxiety management programme. FindingsThe study has demonstrated the value of involving people with intellectual disability in the co-production of an anxiety management programme. Additional findings identified the real-life challenges and experiences of the impact anxiety has on people's lives. Originality/valueTo our knowledge, this is the first study to involve people with intellectual disability in developing an anxiety management programme as co-production partners. This paper underlines the value of understanding and involving people as co-production partners in developing clinical interventions.
引用
收藏
页码:26 / 36
页数:11
相关论文
共 32 条
[1]   Self-reported stigma and symptoms of anxiety and depression in people with intellectual disabilities: Findings from a cross sectional study in England [J].
Ali, Afia ;
King, Michael ;
Strydom, Andre ;
Hassiotis, Angela .
JOURNAL OF AFFECTIVE DISORDERS, 2015, 187 :224-231
[2]   Pharmacotherapy for mood and anxiety disorders in older people with intellectual disability in comparison with the general population [J].
Axmon, Anna ;
El Mrayyan, Nadia ;
Eberhard, Jonas ;
Ahlstrom, Gerd .
BMC PSYCHIATRY, 2019, 19 (1)
[3]   Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities/Mental Retardation (DC-LD) and the diagnosis of anxiety disorders:: a review [J].
Bailey, NM ;
Andrews, TM .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2003, 47 :50-61
[4]   Psychiatric disorders in adolescents and adults with autism and intellectual disability: A representative study in one county in Norway [J].
Bakken, Trine L. ;
Helverschou, Sissel B. ;
Eilertsen, Dag E. ;
Heggelund, Trond ;
Myrbakk, Even ;
Martinsen, Harald .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2010, 31 (06) :1669-1677
[5]   Prevalence of Challenging Behaviour in Adults with Intellectual Disabilities, Correlates, and Association with Mental Health [J].
Bowring, Darren L. ;
Painter, Jon ;
Hastings, Richard P. .
CURRENT DEVELOPMENTAL DISORDERS REPORTS, 2019, 6 (04) :173-181
[6]  
Braun V., 2006, Qualitative Research in Psychology, V3, P77, DOI [10.1191/1478088706qp063oa, DOI 10.1191/1478088706QP063OA, DOI 10.1080/14780887.2020.1769238]
[7]   Acceptance and commitment therapy (ACT) for adults with intellectual disabilities and/or autism spectrum conditions (ASC): A systematic review" [J].
Byrne, Gary ;
O'Mahony, Teresa .
JOURNAL OF CONTEXTUAL BEHAVIORAL SCIENCE, 2020, 18 :247-255
[8]  
Challenging Behaviour Foundation, 2021, COMMUNICATION
[9]   Mental ill-health in adults with intellectual disabilities: prevalence and associated factors [J].
Cooper, Sally-Ann ;
Smiley, Elita ;
Morrison, Jillian ;
Williamson, Andrew ;
Allan, Linda .
BRITISH JOURNAL OF PSYCHIATRY, 2007, 190 :27-35
[10]   Multiple physical and mental health comorbidity in adults with intellectual disabilities: population-based cross-sectional analysis [J].
Cooper, Sally-Ann ;
McLean, Gary ;
Guthrie, Bruce ;
McConnachie, Alex ;
Mercer, Stewart ;
Sullivan, Frank ;
Morrison, Jill .
BMC FAMILY PRACTICE, 2015, 16