Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research

被引:5
作者
Grace, Joanna [1 ]
Nind, Melanie [1 ]
de Haas, Catherine [1 ]
Hope, Joanna [2 ,3 ]
机构
[1] Univ Southampton, Sch Educ, Southampton SO17 1BJ, England
[2] Univ Southampton, Sch Hlth Sci, Southampton SO17 1BJ, England
[3] Natl Inst Hlth Res NIHR, Appl Res Collaborat ARC, Southampton SO16 7NP, England
来源
SOCIAL SCIENCES-BASEL | 2024年 / 13卷 / 01期
关键词
inclusive research; participatory research; profound intellectual and multiple disabilities; decolonising research; belonging; intersubjectivity; PERSPECTIVE; IDENTITY; LESSONS;
D O I
10.3390/socsci13010037
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
This paper pursues the argument that finding a way for people with profound intellectual and multiple disabilities to belong in inclusive research requires starting from a deep knowledge of the people in question. This paper illustrates this idea in action showing what can be possible from building research around 'being with' people with profound intellectual disabilities, creating intersubjective knowledge together. It follows the journey of fostering a relational research space that a young person with profound intellectual and multiple disabilities can occupy, their assenting to share the space and ensuing exploring together in embodied ways. Small stories show where this particular open road of inclusive research can lead. The analysis interacts with provocations from decolonising research that demand respect for wider ways of knowing, doing research and being human. The paper invites reflection on the ways in which research needs to be deconstructed to be inclusive for all.
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页数:11
相关论文
共 78 条
[1]   Searching for Belonging - An Analytical Framework [J].
Antonsich, Marco .
GEOGRAPHY COMPASS, 2010, 4 (06) :644-659
[2]   Are you really using Yarning research? Mapping Social and Family Yarning to strengthen Yarning research quality [J].
Atkinson, Petah ;
Baird, Marilyn ;
Adams, Karen .
ALTERNATIVE-AN INTERNATIONAL JOURNAL OF INDIGENOUS PEOPLES, 2021, 17 (02) :191-201
[3]  
Baggini Julian., 2019, How the World Thinks
[4]   Small stories as a new perspective in narrative and identity analysis [J].
Bamberg, Michael ;
Georgakopoulou, Alexandra .
TEXT & TALK, 2008, 28 (03) :377-396
[5]   Using the concept of encounter to further the social inclusion of people with intellectual disabilities: what has been learned? [J].
Bigby, Christine ;
Wiesel, Ilan .
RESEARCH AND PRACTICE IN INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, 2019, 6 (01) :39-51
[6]   Reflections on doing inclusive research in the "Making Life Good in the Community" study [J].
Bigby, Christine ;
Frawley, Patsie .
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 2010, 35 (02) :53-61
[7]  
Block Peter., 2018, Community: The Structure of Belonging
[8]   Putting down verbal and cognitive weaponry: the need for 'experimental-relational spaces of encounter' between people with and without severe intellectual disabilities [J].
Bos, Gustaaf ;
Abma, Tineke .
DISABILITY & SOCIETY, 2022, 37 (10) :1703-1727
[9]   Yarning as an Interview Method for Non-Indigenous Clinicians and Health Researchers [J].
Byrne, Amy-Louise ;
McLellan, Sandy ;
Willis, Eileen ;
Curnow, Venessa ;
Harvey, Clare ;
Brown, Janie ;
Hegney, Desley .
QUALITATIVE HEALTH RESEARCH, 2021, 31 (07) :1345-1357
[10]   Building Relationships in Inclusive Research in Diverse Contexts [J].
Chalachanova, Anna ;
Nind, Melanie ;
Ostby, May ;
Power, Andrew ;
Tilley, Liz ;
Walmsley, Jan ;
Westergard, Britt-Evy ;
Heia, Torill ;
Gerhardsen, Alf Magne ;
Oterhals, Ole Magnus ;
King, Matthew .
SCANDINAVIAN JOURNAL OF DISABILITY RESEARCH, 2020, 22 (01) :147-157