COVID-19 Induced Environments, Health-Related Quality of Life Outcomes and Problematic Behaviors: Evidence from Children with Syndromic Autism Spectrum Disorders

被引：5

作者：

Bolbocean, Corneliu ^{[1
]}

Rhidenour, Kayla B. ^{[2
]}

McCormack, Maria ^{[3
,4
]}

Suter, Bernhard ^{[4
]}

Holder, J. Lloyd ^{[3
,4
]}

机构：

[1] Univ Oxford, Nuffield Dept Primary Care Hlth Sci, Oxford, England

[2] Baylor Univ, Dept Commun, Waco, TX 76798 USA

[3] Texas Childrens Hosp, Jan & Dan Duncan Neurol Res Inst, 1250 Moursund St Suite 925, Houston, TX 77030 USA

[4] Baylor Coll Med, Dept Pediat, Div Neurol & Dev Neurosci, Houston, TX 77030 USA

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 03期

关键词：

COVID-19; Autism spectrum disorders; HRQoL; Phelan-McDermid syndrome; Rett Syndrome; SYNGAP1-ID; ASSOCIATION;

D O I：

10.1007/s10803-022-05619-7

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Between July 2020 and January 2021, 230 principal caregivers completed a questionnaire to measure proxy-assessed health-related quality of life outcomes (HRQoL), behavioral outcomes in children with syndromic autism spectrum disorders and COVID-19 induced changes to lifestyle and environments. HRQoL and behavioral outcomes reported earlier during the pandemic were generally worse compared to those reported later. COVID-19 induced reduction to a caregiver's mental health appointments, and hours spent watching TV were associated with decreases in HRQoL and increased the likelihood of problematic behaviors. Increasing time outdoors and time away from digital devices were positively associated with HRQoL and behaviors and might protect children from COVID-19 induced restrictions.

引用

页码：1000 / 1016

页数：17

共 50 条

[1] Perceived stress as mediator for longitudinal effects of the COVID-19 lockdown on wellbeing of parents and children [J].

Achterberg, Michelle ;

Dobbelaar, Simone ;

Boer, Olga D. ;

Crone, Eveline A. .

SCIENTIFIC REPORTS, 2021, 11 (01)

[2]

[Anonymous], 2013, Guide to the methods of technology appraisal 2013 The-reference-case

[3] Monitoring population health for Healthy People 2020: evaluation of the NIH PROMISA® Global Health, CDC Healthy Days, and satisfaction with life instruments [J].

Barile, John P. ;

Reeve, Bryce B. ;

Smith, Ashley Wilder ;

Zack, Matthew M. ;

Mitchell, Sandra A. ;

Kobau, Rosemarie ;

Cella, David F. ;

Luncheon, Cecily ;

Thompson, William W. .

QUALITY OF LIFE RESEARCH, 2013, 22 (06) :1201-1211

[4] Syndromic autism: causes and pathogenetic pathways [J].

Benvenuto, Arianna ;

Moavero, Romina ;

Alessandrelli, Riccardo ;

Manzi, Barbara ;

Curatolo, Paolo .

WORLD JOURNAL OF PEDIATRICS, 2009, 5 (03) :169-176

[5] Mutations in SYNGAP1 Cause Intellectual Disability, Autism, and a Specific Form of Epilepsy by Inducing Haploinsufficiency [J].

Berryer, Martin H. ;

Hamdan, Fadi F. ;

Klitten, Laura L. ;

Moller, Rikke S. ;

Carmant, Lionel ;

Schwartzentruber, Jeremy ;

Patry, Lysanne ;

Dobrzeniecka, Sylvia ;

Rochefort, Daniel ;

Neugnot-Cerioli, Mathilde ;

Lacaille, Jean-Claude ;

Niu, Zhiyv ;

Eng, Christine M. ;

Yang, Yaping ;

Palardy, Sylvain ;

Belhumeur, Celine ;

Rouleau, Guy A. ;

Tommerup, Niels ;

Immken, LaDonna ;

Beauchamp, Miriam H. ;

Patel, Gayle Simpson ;

Majewski, Jacek ;

Tarnopolsky, Mark A. ;

Scheffzek, Klaus ;

Hjalgrim, Helle ;

Michaud, Jacques L. ;

Di Cristo, Graziella .

HUMAN MUTATION, 2013, 34 (02) :385-394

[6] Health-Related Quality of Life in Pediatric Patients with Syndromic Autism and their Caregivers [J].

Bolbocean, Corneliu ;

Andujar, Fabiola N. ;

McCormack, Maria ;

Suter, Bernhard ;

Holder, J. Lloyd, Jr. .

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2022, 52 (03) :1334-1345

[7] COVID-19 and child and adolescent psychiatry: an unexpected blessing for part of our population? [J].

Bruining, Hilgo ;

Bartels, Meike ;

Polderman, Tinca J. C. ;

Popma, Arne .

EUROPEAN CHILD & ADOLESCENT PSYCHIATRY, 2021, 30 (07) :1139-1140

[8]

Chen Tian-Hui, 2005, J Zhejiang Univ Sci B, V6, P936, DOI 10.1631/jzus.2005.B0936

[9] Are Cancer Drugs Less Likely to be Recommended for Listing by the Pharmaceutical Benefits Advisory Committee in Australia? [J].

Chim, Lesley ;

Kelly, Patrick J. ;

Salkeld, Glenn ;

Stockler, Martin R. .

PHARMACOECONOMICS, 2010, 28 (06) :463-475

[10] Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey [J].

Colizzi, Marco ;

Sironi, Elena ;

Antonini, Federico ;

Ciceri, Marco Luigi ;

Bovo, Chiara ;

Zoccante, Leonardo .

BRAIN SCIENCES, 2020, 10 (06)

← 1 2 3 4 5 →