Advanced heart failure patients and family caregivers health and function: randomised controlled pilot trial of online dignity therapy

被引:3
作者
Yang, Weiling [1 ]
Zhang, Xiaonan [1 ]
Li, Yanting [1 ]
Lv, Qingyun [1 ]
Gao, Xinxing [2 ]
Lin, Mei [3 ]
Zang, Xiaoying [1 ]
机构
[1] Tianjin Med Univ, Sch Nursing, Tianjin, Peoples R China
[2] Tianjin Med Univ, Hosp 2, Dept Cardiol, Tianjin, Peoples R China
[3] Tianjin Med Univ Gen Hosp, Dept Nursing, Tianjin, Peoples R China
基金
中国国家自然科学基金;
关键词
Heart failure; Quality of life; Spiritual care; Family management; End of life care; Nursing Home care; PALLIATIVE CARE; INTERVENTION; OUTCOMES; END;
D O I
10.1136/spcare-2022-003945
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
ObjectivesThis research investigated the effectiveness of the caregiver-mediated online dignity therapy in enhancing dyadic health and family function. MethodsHeart failure (HF) family dyads were recruited between May and December 2021 from a university-affiliated hospital in China. The dyads (N=70) were randomly allocated to the intervention group and the control group. We assessed patients' outcomes (hope, well-being, Family APGAR Index and quality of life (QoL)) and their family caregivers' outcomes (anxiety, depression and Family APGAR Index) at baseline (T0), 1 week (T1), 4 weeks (T2) and 8 weeks (T3) after discharge. ResultsFor patients, the difference over time was significant in QoL (p<0.001). The interaction effects were significant for hope (p<0.001), well-being (p<0.001), Family APGAR Index (p<0.001) and QoL (p=0.007). For family caregivers, a significant difference in depression (p=0.001) was found within groups. Meanwhile, the interaction effects were significant on anxiety (p=0.002) and depression (p=0.016). ConclusionsCaregiver-mediated online dignity therapy among patients with advanced HF had potential to enhance patient outcomes (level of hope, well-being, family function and QoL) and alleviate caregiver outcomes (anxiety, depression) at 4-week and 8-week follow-up. Thus, we provided scientific evidence for palliative care for advanced HF.
引用
收藏
页码:e1361 / e1371
页数:11
相关论文
共 32 条
[1]   Dignity therapy online: Piloting an online psychosocial intervention for people with terminal illness [J].
Bentley, Brenda ;
O'Connor, Moira ;
Williams, Anne ;
Breen, Lauren J. .
DIGITAL HEALTH, 2020, 6
[2]   Clinical and Economic Burden of Chronic Heart Failure and Reduced Ejection Fraction Following a Worsening Heart Failure Event [J].
Butler, Javed ;
Djatche, Laurence M. ;
Sawhney, Baanie ;
Chakladar, Sreya ;
Yang, Lingfeng ;
Brady, Joanne E. ;
Yang, Mei .
ADVANCES IN THERAPY, 2020, 37 (09) :4015-4032
[3]   Herth Hope Index: psychometric testing of the Chinese version [J].
Chan, Keung Sum ;
Li, Ho Cheung William ;
Chan, Sally Wai-chi ;
Lopez, Violeta .
JOURNAL OF ADVANCED NURSING, 2012, 68 (09) :2079-2085
[4]  
CHAU T-T, 1991, Kaohsiung Journal of Medical Sciences, V7, P27
[5]   Dignity therapy: A novel psychotherapeutic intervention for patients near the end of life [J].
Chochinov, HM ;
Hack, T ;
Hassard, T ;
Kristjanson, LJ ;
McClement, S ;
Harlos, M .
JOURNAL OF CLINICAL ONCOLOGY, 2005, 23 (24) :5520-5525
[6]   Depressive symptoms in patients with heart failure negatively affect family caregiver outcomes and quality of life [J].
Chung, Misook L. ;
Lennie, Terry A. ;
Mudd-Martin, Gia ;
Dunbar, Sandra B. ;
Pressler, Susan J. ;
Moser, Debra K. .
EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING, 2016, 15 (01) :30-38
[7]   Influence of mutuality on quality of life in heart failure patient with inadequate self-care and caregiver dyads: an actor-partner interdependence model analysis [J].
Dellafiore, Federica ;
Chung, Misook L. ;
Alvaro, Rosaria ;
Zeffiro, Valentina ;
Ercole, Vellone ;
Pucciarelli, Gianluca .
EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING, 2022, 21 (04) :366-373
[8]   Effects of a Telehealth Early Palliative Care Intervention for Family Caregivers of Persons With Advanced Heart Failure The ENABLE CHF-PC Randomized Clinical Trial [J].
Dionne-Odom, J. Nicholas ;
Ejem, Deborah B. ;
Wells, Rachel ;
Azuero, Andres ;
Stockdill, Macy L. ;
Keebler, Konda ;
Sockwell, Elizabeth ;
Tims, Sheri ;
Engler, Sally ;
Kvale, Elizabeth ;
Durant, Raegan W. ;
Tucker, Rodney O. ;
Burgio, Kathryn L. ;
Tallaj, Jose ;
Pamboukian, Salpy, V ;
Swetz, Keith M. ;
Bakitas, Marie A. .
JAMA NETWORK OPEN, 2020, 3 (04) :e202583
[9]   Carers' needs in advanced heart failure: A systematic narrative review [J].
Doherty, Leanne C. ;
Fitzsimons, Donna ;
McIlfatrick, Sonja J. .
EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING, 2016, 15 (04) :203-212
[10]   Patient-centered Outcomes in HFrEF Following a Worsening Heart Failure Event: A Survey Analysis [J].
Dunbar, Sandra B. ;
Tan, Xi ;
Lautsch, Dominik ;
Yang, Mei ;
Ricker, Bryan ;
Maculaitis, Martine C. ;
Nagle, Thomas ;
Clark, Luther T. ;
Hilkert, Robert ;
Brady, Joanne E. ;
Spertus, John A. .
JOURNAL OF CARDIAC FAILURE, 2021, 27 (08) :877-887