Experiences of Peer Communities in a Cancer Smartphone App Among Adolescents and Young Adults With Cancer

被引:2
|
作者
Hanghoj, Signe [1 ]
Bentsen, Line [1 ]
Hjerming, Maiken [2 ]
Simonsen, Anette Borup [3 ]
Thycosen, Marianne [4 ]
Bergmann, Mette Buur [5 ]
Godiksen, Dorthe Ostergaard [6 ]
Pappot, Helle [1 ]
机构
[1] Copenhagen Univ Hosp, Dept Oncol, Rigshosp, Copenhagen, Denmark
[2] Copenhagen Univ Hosp, Dept Hematol, Rigshosp, Copenhagen, Denmark
[3] Aarhus Univ Hosp, Dept Hematol, Aarhus, Denmark
[4] Odense Univ Hosp, Dept Oncol, OUH, Odense, Denmark
[5] Zealand Univ Hosp, Dept Hematol, Roskilde, Denmark
[6] Aalborg Univ Hosp, Dept Hematol, Aalborg, Denmark
关键词
App; AYA; Cancer; Community; Peer-to-peer; Psychosocial; Qualitative; SOCIAL MEDIA; SUPPORT; ONLINE; SURVIVORS; PATIENT; CARE;
D O I
10.1016/j.soncn.2023.151408
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Objectives: Adolescents and young adults (AYAs) with cancer have identified connection to online communities of same-age peers to be essential for psycho-social support. In this study, the aim was to explore AYAs with cancers' and AYA cancer survivors' use of the Kr & UAELIG;ftv & UAELIG;rket cancer app's social forum and experiences of peer communities in the forum. Differences due to gender and treatment status were investigated.Data Sources: In all, 85 AYAs aged 15-29 were recruited: 46 on and 39 off cancer treatment. The use of the social forum was assessed by a questionnaire, which were analyzed using descriptive statistics, and telephone interviews were analyzed thematically by the Framework Method.Conclusion: Some AYAs assessed the social forum to be more valuable at time of diagnosis, while others experienced meaningful peer-support after cancer. Women were more active and diligent users than men. The following themes were found: 1) Common understanding of each other's challenges; 2) Other AYAs' stories increase the feeling of comfort but can also be difficult to accommodate; 3) A temporary and unwanted community; and 4) The interaction is personal but quickly stalls.Implications for Nursing Practice: The results are relevant to the development of AYA cancer apps, with a view to strengthening peer-to-peer relationships. Although the use of the Kr & UAELIG;ftv & UAELIG;rket app was temporary, it presented a meaningful community for AYAs with cancer. The community feeling reduced loneliness and increased the sense of togetherness. The app met AYAs' needs and wishes for peer-to-peer age-appropriate cancer support, which can be implemented and provided by nurses.& COPY; 2023 The Author(s). Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/)
引用
收藏
页数:9
相关论文
共 50 条
  • [21] Understanding the experiences of adolescents and young adults with cancer: A meta-synthesis
    Kim, Bora
    White, Kate
    Patterson, Pandora
    EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2016, 24 : 39 - 53
  • [22] Adolescents and Young Adults With Cancer: Their Cancer Normal
    Pyke-Grimm, K. A.
    PEDIATRIC BLOOD & CANCER, 2020, 67 : S86 - S86
  • [23] International Trends in the Incidence of Cancer Among Adolescents and Young Adults
    Gupta, Sumit
    Harper, Andrew
    Ruan, Yibing
    Barr, Ronald
    Frazier, A. Lindsay
    Ferlay, Jacques
    Steliarova-Foucher, Eva
    Fidler-Benaoudia, Miranda M.
    JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE, 2020, 112 (11): : 1105 - 1117
  • [24] Incidence trends of gastric cancer among adolescents and young adults
    Afify, Ay
    JOURNAL OF GASTROENTEROLOGY AND HEPATOLOGY, 2023, 38 (02) : 337 - 337
  • [25] Impact of depression among adolescents and young adults with cancer.
    Qiao, Edmund Men
    Qian, Alexander
    Mariano, David J.
    Lee, Terrence C.
    Youngblood, Eventine
    Chou, Linda
    Murphy, James Don
    JOURNAL OF CLINICAL ONCOLOGY, 2022, 40 (16)
  • [26] Cancer Incidence and Survival among Adolescents and Young Adults in Korea
    Moon, Eun-Kyeong
    Park, Hyeon Jin
    Oh, Chang-Mo
    Jung, Kyu-Won
    Shin, Hee Young
    Park, Byung Kiu
    Won, Young-Joo
    PLOS ONE, 2014, 9 (05):
  • [27] Barriers to medication adherence among adolescents and young adults with cancer
    McGrady, Meghan E.
    Ketterl, Tyler G.
    Norris, Robin E.
    Perentesis, John P.
    Pettee, Daniel
    Mara, Constance A.
    Breen, Gabriella
    Pai, Ahna L. H.
    PEDIATRIC BLOOD & CANCER, 2023, 70 (03)
  • [28] Health Care Transitions Among Adolescents and Young Adults With Cancer
    Ehrhardt, Matthew J.
    Friedman, Danielle Novetsky
    Hudson, Melissa M.
    JOURNAL OF CLINICAL ONCOLOGY, 2024, 42 (06) : 743 - 754
  • [29] Contributors and Inhibitors of Resilience Among Adolescents and Young Adults with Cancer
    Rosenberg, Abby R.
    Yi-Frazier, Joyce P.
    Wharton, Claire
    Gordon, Karen
    Jones, Barbara
    JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 2014, 3 (04) : 185 - 193
  • [30] Current situation of cancer among adolescents and young adults in Japan
    Akira Ohara
    Tatsuro Furui
    Chikako Shimizu
    Seiichiro Ozono
    Kazuhito Yamamoto
    Akira Kawai
    Ryohei Tatara
    Akiko Higuchi
    Keizo Horibe
    International Journal of Clinical Oncology, 2018, 23 : 1201 - 1211