Experiences of Peer Communities in a Cancer Smartphone App Among Adolescents and Young Adults With Cancer

被引:2
|
作者
Hanghoj, Signe [1 ]
Bentsen, Line [1 ]
Hjerming, Maiken [2 ]
Simonsen, Anette Borup [3 ]
Thycosen, Marianne [4 ]
Bergmann, Mette Buur [5 ]
Godiksen, Dorthe Ostergaard [6 ]
Pappot, Helle [1 ]
机构
[1] Copenhagen Univ Hosp, Dept Oncol, Rigshosp, Copenhagen, Denmark
[2] Copenhagen Univ Hosp, Dept Hematol, Rigshosp, Copenhagen, Denmark
[3] Aarhus Univ Hosp, Dept Hematol, Aarhus, Denmark
[4] Odense Univ Hosp, Dept Oncol, OUH, Odense, Denmark
[5] Zealand Univ Hosp, Dept Hematol, Roskilde, Denmark
[6] Aalborg Univ Hosp, Dept Hematol, Aalborg, Denmark
关键词
App; AYA; Cancer; Community; Peer-to-peer; Psychosocial; Qualitative; SOCIAL MEDIA; SUPPORT; ONLINE; SURVIVORS; PATIENT; CARE;
D O I
10.1016/j.soncn.2023.151408
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Objectives: Adolescents and young adults (AYAs) with cancer have identified connection to online communities of same-age peers to be essential for psycho-social support. In this study, the aim was to explore AYAs with cancers' and AYA cancer survivors' use of the Kr & UAELIG;ftv & UAELIG;rket cancer app's social forum and experiences of peer communities in the forum. Differences due to gender and treatment status were investigated.Data Sources: In all, 85 AYAs aged 15-29 were recruited: 46 on and 39 off cancer treatment. The use of the social forum was assessed by a questionnaire, which were analyzed using descriptive statistics, and telephone interviews were analyzed thematically by the Framework Method.Conclusion: Some AYAs assessed the social forum to be more valuable at time of diagnosis, while others experienced meaningful peer-support after cancer. Women were more active and diligent users than men. The following themes were found: 1) Common understanding of each other's challenges; 2) Other AYAs' stories increase the feeling of comfort but can also be difficult to accommodate; 3) A temporary and unwanted community; and 4) The interaction is personal but quickly stalls.Implications for Nursing Practice: The results are relevant to the development of AYA cancer apps, with a view to strengthening peer-to-peer relationships. Although the use of the Kr & UAELIG;ftv & UAELIG;rket app was temporary, it presented a meaningful community for AYAs with cancer. The community feeling reduced loneliness and increased the sense of togetherness. The app met AYAs' needs and wishes for peer-to-peer age-appropriate cancer support, which can be implemented and provided by nurses.& COPY; 2023 The Author(s). Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/)
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页数:9
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