Quality of Life Measurements from the Patient Perspective: Capturing the Heterogeneity of the Patient Experience in a Standardised Way

被引：3

作者：

Matheson, David ^{[1
,5
]}

Abdel-Aty, Hoda ^{[2
,3
,4
]}

O'Shea, Lorna ^{[2
,3
,4
]}

机构：

[1] Univ Wolverhampton, Fac Educ Hlth & Wellbeing, Wolverhampton, England

[2] Inst Canc Res, London, England

[3] Royal Marsden NHS Fdn Trust, London, England

[4] UCL, Inst Clin Trials & Methodol, MRC Clin Trials Unit UCL, London, England

[5] Royal Marsden NHS Fdn Trust, Fac Educ Hlth & Wellbeing, London, England

来源：

EUROPEAN UROLOGY FOCUS | 2023年 / 9卷 / 03期

关键词：

Quality of life; Patient experience; Patient -reported outcome; measures;

D O I：

10.1016/j.euf.2023.03.013

中图分类号：

R5 [内科学]; R69 [泌尿科学（泌尿生殖系疾病）];

学科分类号：

1002 ; 100201 ;

摘要：

For patients, quality of life is the confluence and interaction of multiple factors related to both the disease and to how life is lived with and beyond the disease. When tasked with completing a quality-of-life questionnaire, patients may well wonder for whose benefit this is, which really needs to be made clear. We discuss some of the issues around quality-of-life questionnaires and the challenge of the heterogeneity of the patient experience. Patient summary: This mini-review discusses quality-of-life measurements from the patient perspective and the need to take account of the patient's life and not just the disease. (c) 2023 The Author(s). Published by Elsevier B.V. on behalf of European Association of Urology. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).

引用

页码：425 / 426

页数：2

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