Intellectual disabilities and dementia: New tasks and experiences of Austrian formal caregivers

被引:0
作者
Pendl, Dominik [1 ,2 ]
Glatz, Mathieu [1 ]
Gasteiger-Klicpera, Dr. Phil Barbara [1 ]
机构
[1] Karl Franzens Univ Graz, Inst Educ Res & Teacher Educ, Inclus Educ Unit, Graz, Austria
[2] Karl Franzens Univ Graz, Inst Educ Res & Teacher Educ, Inclus Educ Unit, Merangasse 70 2, A-8010 Graz, Austria
关键词
challenges; dementia; formal caregivers; intellectual disabilities; wishes; ALZHEIMERS-DISEASE; SUPPORTING PEOPLE; DOWN-SYNDROME; STAFF; ADULTS; WORKING; CARE;
D O I
10.1111/jar.13165
中图分类号
G44 [教育心理学];
学科分类号
0402 ; 040202 ;
摘要
BackgroundIn Austria, due to its history, only relatively little research on the topic of intellectual disabilities and dementia has been conducted to date. The present study thus aims to explore the challenges and tasks currently facing formal caregivers, together with assessing their wishes for further development.MethodsTen semi-structured interviews were held with formal caregivers. Interviews were transcribed and analysed by means of structured qualitative content analysis.ResultsCaregivers must deal with conflicts between residents, and with increasing demands for care and emotional support. Education and training on dementia and intellectual disability are mostly of high quality, but still remain insufficient. Caregivers would like to see suitable adaptation of care premises, smaller groups, more staff and better training on dementia and intellectual disability.ConclusionTo ensure quality care and 'ageing in place', caregivers and providers need to pay greater attention to dementia-related changes when planning and adapting services.
引用
收藏
页数:11
相关论文
共 50 条
  • [11] Experiences of Caregivers in a Dementia Simulation Program
    Han, Areum
    Brown, Diane
    JOURNAL OF SOCIAL SERVICE RESEARCH, 2020, 46 (01) : 71 - 80
  • [12] A systematic review of psychosocial interventions for people with intellectual disabilities and dementia
    Muralidhar, Malvika
    Spector, Aimee
    Hui, Esther K.
    Liu, Lisa
    Ali, Afia
    AGING & MENTAL HEALTH, 2024, 28 (03) : 385 - 395
  • [13] Experiences of people with intellectual disability and dementia: A systematic review
    Jacobs, Paula
    Watchman, Karen
    Wilkinson, Heather
    Hoyle, Louise
    McGenily, Laura
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2023, 36 (02) : 241 - 258
  • [14] Support for caregivers of adults with intellectual disabilities suffering from early-onset dementia
    Krysta, K.
    EUROPEAN PSYCHIATRY, 2020, 63 : S627 - S628
  • [15] Incidence of dementia in older adults with intellectual disabilities
    Strydom, Andre
    Chan, Trevor
    King, Michael
    Hassiotis, Angela
    Livingston, Gill
    RESEARCH IN DEVELOPMENTAL DISABILITIES, 2013, 34 (06) : 1881 - 1885
  • [16] Communication experiences of family caregivers of hospitalized adults with intellectual and developmental disabilities -A qualitative study
    Charles, Marie Lourdes
    NURSING OPEN, 2020, 7 (06): : 1725 - 1734
  • [17] Dementia in Older Adults With Intellectual Disabilities-Epidemiology, Presentation, and Diagnosis
    Strydom, Andre
    Shooshtari, Shahin
    Lee, Lynette
    Raykar, Veena
    Torr, Jenny
    Tsiouris, John
    Jokinen, Nancy
    Courtenay, Ken
    Bass, Nick
    Sinnema, Margje
    Maaskant, Marian
    JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, 2010, 7 (02) : 96 - 110
  • [18] Validation of the Japanese version of the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities
    Takenoshita, S.
    Terada, S.
    Kuwano, R.
    Inoue, T.
    Kurozumi, T.
    Choju, A.
    Suemitsu, S.
    Yamada, N.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2020, 64 (12) : 970 - 979
  • [19] Reliance on Carer Reports of Early Symptoms of Dementia Among Adults With Intellectual Disabilities
    Jamieson-Craig, Rebekah
    Scior, Katrina
    Chan, Trevor
    Fenton, Cormac
    Strydom, Andre
    JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, 2010, 7 (01) : 34 - 41
  • [20] Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review
    Tsang, Winnie
    Oliver, David
    Triantafyllopoulou, Paraskevi
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2023, 36 (01) : 28 - 38