Family resilience of families with parental cancer and minor children: a qualitative analysis

被引:5
作者
Heuser, Christian [1 ,2 ,3 ,4 ,5 ]
Schneider, Juliane Nora [6 ]
Heier, Lina [1 ,2 ,3 ,4 ,5 ,7 ,8 ]
Ernstmann, Nicole [1 ,2 ,3 ,4 ,5 ]
Nakata, Hannah [3 ,4 ,5 ]
Petermann-Meyer, Andrea [5 ,9 ]
Bremen, Rebecca [5 ,9 ]
Karger, Andre [5 ,10 ]
Icks, Andrea [11 ,12 ,13 ]
Bruemmendorf, Tim H. [5 ,9 ]
Geiser, Franziska [5 ,6 ]
机构
[1] Univ Cologne, Inst Med Sociol Hlth Serv Res & Rehabil Sci, Fac Med, Chair Hlth Serv Res, Cologne, Germany
[2] Univ Cologne, Univ Hosp Cologne, Cologne, Germany
[3] Univ Hosp Bonn, Ctr Hlth Commun, Clin & Policlin Psychosomat Med & Psychotherapy, Bonn, Germany
[4] Univ Hosp Bonn, Hlth Serv Res, Clin & Policlin Psychosomat Med & Psychotherapy, Bonn, Germany
[5] Aachen Bonn Cologne Dusseldorf, Ctr Integrated Oncol, CIO, ABCD, Aachen, Germany
[6] Univ Bonn, Clin & Policlin Psychosomat Med & Psychotherapy, Univ Hosp Bonn, D-53105 Bonn, Germany
[7] Maastricht Univ, Med Ctr, Dept Clin Pharm & Toxicol, Maastricht, Netherlands
[8] Maastricht Univ, CARIM Sch Cardiovasc Dis, Maastricht, Netherlands
[9] Rhein Westfal TH Aachen, Fac Med, Dept Hematol Oncol Hemostaseol & Stem Cell Transpl, Aachen, Germany
[10] Heinrich Heine Univ Dusseldorf, Clin Inst Psychosomat Med & Psychotherapy, Med Fac, Dusseldorf, Germany
[11] Heinrich Heine Univ Dusseldorf, Univ Hosp Dusseldorf, Dusseldorf, Germany
[12] Heinrich Heine Univ Dusseldorf, Inst Hlth Serv Res & Hlth Econ, Fac Med, Dusseldorf, Germany
[13] German Diabet Ctr, Inst Hlth Serv Res & Hlth Econ, Dusseldorf, Germany
来源
FRONTIERS IN PSYCHOLOGY | 2024年 / 14卷
关键词
parental cancer; minor children; resilience; family intervention; family-SCOUT; oncology; qualitative research and analysis; health services research; PEDIATRIC CANCER; STRESS; DISTRESS; COMMUNICATION; PERCEPTIONS; POPULATION; DEPRESSION; ADULTS; WOMEN;
D O I
10.3389/fpsyg.2023.1251049
中图分类号
B84 [心理学];
学科分类号
04 ; 0402 ;
摘要
Introduction Estimated 50,000 minor children in Germany experience a newly diagnosed cancer in one of their parents every year. Family resilience has proven to be an important concept against life crises. However, little research exists regarding family resilience in the context of parental cancer with minor children. Based on the "Family Resilience Framework," the aim of the study is to investigate the processes of family resilience of affected families. In addition, we explore which combinations of promoting family resilience processes can be characterized.Methods As part of the mixed-method quasi-experimental interventional study "F-SCOUT," a qualitative content analysis was used to analyze the documentation of the "Family-Scouts" (a fixed contact person who advises, accompanies, and supports the families). Documentation was performed by families' study inclusion (T0), after 3 months (T1) and 9 months (T2) concerning current family situation, organization of everyday life, emotional coping, open communication within the family, and planned tasks.Results The N = 73 families had between one and six children. In 58 (79%) families, the mother had cancer. In the course of the analysis, a category system with 10 main categories and 36 subcategories emerged. Family resilience processes were described to different extents. Combinations of categories promoting family resilience were characterized by the use of social resources, flexibility, economic resources, and open communication.Discussion The findings are consistent with existing assumptions about family resilience in terms of the importance of social resources, family cohesion, mutual support, flexibility, open communication, and psychological well-being. In contrast to the findings of previous research, spirituality, and collaborative problem-solving indicate less centrality here. In turn, the findings on economic resources and information-seeking provide a valuable addition to the family resilience literature in the context of parental cancer with minor children.Clinical trial registration ClinicalTrials.gov, identifier NCT04186923.
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页数:11
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