ONLINE MONITORING OF FOCAL SPASTICITY TREATMENT WITH BOTULINUM TOXIN IN PEOPLE WITH CHRONIC STROKE OR HEREDITARY SPASTIC PARAPLEGIA: A FEASIBILITY STUDY

被引：0

作者：

Kerstens, Hans C. J. W. ^{[1
,2
,6
]}

Nijkrake, Maarten J. ^{[1
,3
]}

De Swart, Bert J. M. ^{[1
,2
]}

Nijhuis-van der Sanden, Ria W. G. ^{[1
]}

Vos-van der Hulst, Marije ^{[4
]}

Bos, Gery J. ^{[5
]}

Geurts, Alexander C. H. ^{[1
,4
]}

Van Der Wees, Philip J. ^{[1
]}

机构：

[1] Radboud Univ Nijmegen, Med Ctr, Dept Rehabil, Nijmegen, Netherlands

[2] HAN Univ Appl Sci, Dept Neurorehabil, Nijmegen, Netherlands

[3] Radboud Univ Nijmegen, Med Ctr, Donders Inst Brain Cognit & Behav, Dept Neurol, Nijmegen, Netherlands

[4] Rehabil Ctr Sint Maartenskliniek, Dept Rehabil, Nijmegen, Netherlands

[5] Rehabil Ctr Tolbrug, Dept Rehabil, Bosch, Netherlands

[6] Radboud Univ Nijmegen, Med Ctr, Dept Rehabilitat, Geert Grooteplein Zuid 10, NL-6525 GA Nijmegen, Netherlands

来源：

JOURNAL OF REHABILITATION MEDICINE | 2023年 / 55卷

关键词：

stroke; hereditary spastic paraparesis; spasticity; feasibility studies; internet-based intervention; electronic health record;

D O I：

暂无

中图分类号：

R49 [康复医学];

学科分类号：

100215 ;

摘要：

Objective: To investigate the feasibility and usabi-lity of an online spasticity monitoring tool amongst people with hereditary spastic paraplegia or chro-nic stroke receiving botulinum toxin treatment, and their healthcare providers.Methods: Mixed methods cohort study, measuring recruitment success and adherence to the monito-ring in 3 rehabilitation institutions. In addition, the System Usability Scale (SUS) and interviews with patients and their healthcare providers were used for quantitative and qualitative analysis, respec-tively. A deductive directed content analysis was used for qualitative evaluation.Results: Of the 19 persons with hereditary spastic paraplegia and 24 with stroke who enrolled in the study, recruitment success and adherence were higher amongst people with hereditary spastic para-plegia compared with stroke. Usability was found "marginal" by rehabilitation physicians and "good" by patients and physical therapists (SUS scores 69, 76, and 83, respectively). According to all partici-pant groups, online monitoring potentially contribu-tes to spasticity management if it is tailored to the actual needs and capabilities of patients, and if it can easily be integrated into the daily/working routines of all users.Conclusion: Online monitoring of spasticity in people with hereditary spastic paraplegia or stroke receiving treatment with botulinum toxin may be feasible, provided that the monitoring tool is tailo-red to the needs of all users.LAY ABSTRACT This study investigated recruitment success and adhe-rence to an online spasticity monitoring tool amongst people with hereditary spastic paraplegia or stroke and their healthcare providers. Usability was evaluated with a questionnaire and interviews. Twenty-four persons with stroke and 19 with hereditary spastic paraplegia participated through 3 rehabilitation institutions. The hereditary spastic paraplegia group was more willing to participate and their adherence to online monitoring was higher than the stroke group. Usability was scored "mar-ginal" by rehabilitation physicians, and "good" by people with spasticity and their physical therapists. The inter-views showed that online monitoring may contribute to better spasticity management if it is tailored to the ac-tual needs and capabilities of people with spasticity, and if it can easily be integrated into daily/working routines of all users. Online monitoring of spasticity seems to be feasible. Tailoring the monitoring tool to patients' needs and capabilities, and the professionals' routines may further improve feasibility and usability.

引用

页数：10

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